medical education

21st December 2023

‘First Do No Harm’: Expert Reflections on a Rare Bone Disease’

m4rd event, M4RD Events Conference, fop friends, medical education

JOIN US AT THE HUNTERIAN MUSEUM! Join Medics4RareDiseases and FOP Friends for a unique reception, at the prestigious Hunterian Museum, at the Royal College of Surgeons of England on 13th […]

21st December 2023

Register now for M4RD’s annual symposium!

m4rd conference, M4RD Events medical education, royal society of medicine, unusual suspects

Medics4RareDiseases is excited to announce that you can now register for our 11th annual symposium! The Unusual Suspects 2024: Rare Diseases in Everyday Medicine will take place on the afternoon […]

24th November 2022

The Dangers of ‘Optimism Bias’

Lauren Ferretti Ambassador, daretothinkrare, doctor, Genetics, Genomics, M4RD, medicalstudent, raredisease diagnosis, doctor, genetics, medical education, medicine, rare disease, royal society of medicine

Dr Lauren Ferretti is a paediatric registrar in London with a life-long commitment to charity fundraising and an interest in genetics and whole genome sequencing. Through working with M4RD as […]

15th September 2022

Do you #daretothinkrare for Freshers?

Jo McPherson Ambassador, daretothinkrare, M4RD, M4RD Learn, medicalstudent daretothinkrare, Freshers, M4RD, Medica Students, medical education

We are M4RD and we #daretothinkrare Medics4RareDiseases is a registered charity started by medics, for medics! In fact, M4RD started out as a university society at Barts & The London. […]

9th June 2022

Rare Diseases Action Plan – Actions 8 & 9

Emma Huskinson M4RD, raredisease, Report, UK Rare Disease Framework HCP, M4RD, medical education, rare disease, Rare Diseases Action Plan

This is the third instalment of M4RD’s comments on the English Rare Diseases Action Plan. I will now discuss Action 8; Extend the remit of the Genomics Education Programme to […]

31st May 2022

Rare Diseases Action Plan Focus on Action 6

Emma Huskinson M4RD, raredisease, Report, UK Rare Disease Framework HCP, medical education, rare disease, Rare Diseases Action Plan

In this post Emma will focus on Action 6 of the England Rare Disease Action Plan; develop an innovative digital educational resource. This is the first action listed in the Plan […]

26th May 2022

Rare Disease Action Plan 2022 – focus on priority 2, action 7

Emma Huskinson M4RD, Report, UK Rare Disease Framework HCP, M4RD, medical curriculum, medical education, rare disease, Rare Diseases Action Plan, undergraduate

In my last post I introduced some of M4RD’s initial thoughts on the Rare Diseases Action Plan 2022 Action 6. Now I’d like to continue exploring Priority 2; ‘increasing awareness […]

25th May 2022

Understanding rare disease: communicating with patients

Jo McPherson daretothinkrare, M4RD, M4RD Events, M4RD Learn, medicalstudent, Rare Disease 101 Find The One In 17, HCPs, I am number 17, M4RD, medical education, medical student, rare disease

M4RD is delighted to announce that we will be hosting an interactive virtual event exclusively for medical students wishing to learn more about complex communication skills. This event is initiated […]

28th April 2022

A REAL Rare Rollercoaster – from Paramedic to Patient

Melissa Clasen interview, patient, Podcast, raredisease diagnosis, doctor, medical education, rare disease, Renal Nutcracker Syndrome, SMA, Superior Mesenteric Artery Syndrome, Wilkie Syndrome

All aboard this ride! This week, on The Rare Disease Podcast 4 Medics, I had the honor to speak to a paramedic, turned patient. Marie was a practicing student paramedic […]

30th March 2022

Fifty Years For a Fibular Hemimelia Diagnosis

Melissa Clasen interview, M4RD, patient, Podcast congenital, diagnosis, fibula hemimelia, medical education, rare disease

Fibular Hemimelia is a rare congenital condition characterised by the complete or partial absence of the fibula bone. It is the same condition which afflicted athletes Aimee Mullins and Oscar […]