Reflections from a celebratory symposium at UCL exploring childhood rare disease research, paediatric surveillance, whole-family care and the growing demand for rare disease education.
We are incredibly proud to share that Medics for Rare Disease has been recognised in the NatWest SE100 Index of the UK’s top social enterprises. A celebration of the country’s […]
Patient Advocacy Groups Needed! We want your help and input on ‘Does social justice exist in rare disease?’ We are collaborating with the Children’s Hospital of Eastern Ontario (CHEO) to […]
Our very own CEO, Dr Lucy Mckay was recently interviewed by Rare Disease International (RDI) about her role as commissioner on the RDI-Lancet Global Commission on Rare Disease (LCRD). Read […]
What is Salivary Gland Cancer? Salivary gland cancers are rare with only 0.3% of cancers globally being salivary gland cancers. They can affect the salivary glands (in the mouth) and […]
Hello, I’m Megan Pullein. I am excited to join Medics for Rare Disease as a Research Project Manager, working on our contribution to the RDI-Lancet Commission on Rare Diseases. A […]
