The M4RD team has just got bigger…
We’re excited to announce the appointment of our new part-time Operations and Finance Manager, Jo McPherson. Many of you will already recognise the name because Jo has been helping out Lucy […]
Uncategorised
After 31 years with the BPSU Richard Lynn has retired!
Richard Lynn has retired after 31 years as the British Paediatric Surveillance Unit’s Scientific Coordinator and M4RD would like to thank him for advocating for those affected by rare disease. Richard started […]
Rare Disease 101 is LIVE!
Rare Disease 101 Today Medics4RareDiseases has launched its online, interactive e-learning platform dedicated to teaching medics the fundamentals of rare disease and help them manage both their undiagnosed and diagnosed […]
Priority Two: The key to unlocking The UK Rare Diseases Framework
Written by Dr Lucy McKay, CEO of Medics4RareDiseases The new UK Rare Diseases Framework has identified four key priority areas for addressing the challenges faced by those living with a […]
Rare Disease 101 Sneak-Peek
Rare Disease 101 Today Medics4RareDiseases has realised a long-term goal: we have created Rare Disease 101 training for medical professionals. RD101 is an online and interactive education module created for […]
A day in the life of a medical student during the pandemic
Written by Chloe Bell, a fourth-year medical student at the University of Manchester Hi, my name is Chloe and I’m currently a fourth-year medical student at the University of Manchester. […]
Rare Disease – Not Just For Specialists
Written by Dr Katherine Colvin, European Medical Journal (EMJ) Rare diseases are individually rare, but collectively common. Rare diseases, each occurring in fewer than 1 in 2,000 people (EU definition1), affect 3.5–5.9% […]
Student Voice Prize Runner-Up Dr Sandy Ayoub 2019 live on Insta!
Join us on Instagram Live Last year, Dr Sandy Ayoub (now alumnus of St George’s University of London) teamed up with the patient group, FOP and Friends, to talk directly to […]
Announcing the launch of the 7th annual Student Voice Prize
The Student Voice Prize is back for its 7th year with a new website and logo! The Student Voice Prize is an annual international essay competition brought to you by M4RD in collaboration […]
A dual perspective on genomic medicine
Dr Charles Steward is the Patient Advocacy & Patient Engagement Lead at Congenica a digital health company based on the Wellcome Genome Campus UK. He has spent 26 years working […]