Interested in studying a childhood rare disease or condition?

Jo Higgs Uncategorised BPSU, bursary, children, rare diseases, RCPCH, study 0

Each year the British Paediatric Surveillance Unit (BPSU) invite paediatricians planning a surveillance study to apply for this bursary. The successful applicant receives a free slot on the BPSU Orange Card and a stipend towards their training needs. The 2019-20 application period is now open, with a deadline of Friday, 11 October. https://www.rcpch.ac.uk/education-careers/fellowships-and-prizes/bpsu-sir-peter-tizard-research-bursary

16 August 2019

30% Project: A Conversation About Baby and Child Death

Lucy McKay disease, doctor, event, Family support, Gallery, patient, Quote, raredisease, Uncategorised 30%, 30% project, ceri, houses of parliament, Photography, Same but different 0

Same But Different is starting the conversation about baby and child death with their newest exhibit ‘30% Project’. It raises awareness of the statistic that 30% of those diagnosed with a rare disease will die before their 5th birthday.

25 June 2019

Medics4RareDiseases becomes a UK Registered Charity

Lucy McKay News, Uncategorised Charity, Charity Commission, Diagnostic odyssey, funding, fundraising, health, healthcare, medical education, medical school, rare disease, sickness, sponsorship 0

Medics4RareDiseases registered as a UK charity who’s object is the relief of sickness and preservation of health of those suffering from rare diseases.

Interested in studying a childhood rare disease or condition?

30% Project: A Conversation About Baby and Child Death

Medics4RareDiseases becomes a UK Registered Charity

Everything You Wanted to Know about Genomics but Were Afraid to Ask

The NF Conference

RAREsummit19

Pompe Preceptorship

The 33rd symposium: Cystic fibrosis in children and adults