Mystery Monday is BACK and this week we are focusing on Familial Intracranial Aneurysms! Thank you so much to HBA Support for the fantastic resources! Be sure to stay in […]
Register for your place on this international virtual conference hosted by Wolfram Syndrome UK and WellChild. The 10th WS conference will again be held as virtual events over 2 Saturdays […]
This unique webinar unites experts from primary care, advocacy and medical genetics within the rare disease sector to discuss the impact of the virus on the rare disease community. Participants […]
Findacure’s Drug Repurposing for Rare Diseases Conference is returning for its seventh consecutive year!
Each year the British Paediatric Surveillance Unit (BPSU) invite paediatricians planning a surveillance study to apply for this bursary. The successful applicant receives a free slot on the BPSU Orange […]