Medics for Rare Disease

26th June 2026

Reflections from ECRD 2026: Putting People at the Centre of Rare Disease Care

Helen Maginnis Healthcare policy, Rare Disease, UK Rare Disease Framework diagnosis, Diagnostic odyssey, ECRD 2026, European Conference on Rare Diseases, Eurordis, Healthcare professionals, Holistic care, Medics for Rare Disease, mental health, Patient-centred care, Rare Disease Awareness, Rare Disease Care, Rare disease policy, rare diseases 0

Earlier this month, I travelled to Prague with Lucy McKay and Sheela Upadhyaya to attend the 13th European Conference on Rare Diseases and Orphan Products (ECRD 2026) on behalf of […]

21st May 2026

Impact Storytelling

Lucy McKay Healthcare education, Impact Stories, Rare Disease Advocacy charity leadership, healthcare equity, healthcare inequality, impact storytelling, medical education, Medics for Rare Disease, NatWest SE100, patient advocacy, rare disease, social enterprise, storytelling

Paying for Medicine In 2010 I was offered a place at medical school! I had managed to secure a coveted place on the Graduate Entry Programme (GEP) at Barts and […]

14th May 2026

Medics for Rare Disease Recognised in the NatWest SE100 Top Social Enterprises Index

Megan Pullein Healthcare education, Impact Stories, Rare Disease Advocacy charity leadership, healthcare equity, healthcare inequality, impact storytelling, medical education, Medics for Rare Disease, NatWest SE100, patient advocacy, rare disease, social enterprise, storytelling

We are incredibly proud to share that Medics for Rare Disease has been recognised in the NatWest SE100 Index of the UK’s top social enterprises. A celebration of the country’s […]

Nurses supporting patients with rare diseases on International Nurses Day

13th May 2026

International Nurses Day: Supporting Rare Disease Nursing

Emma Huskinson Healthcare education, Nursing, Rare Disease Global Nursing Network, Healthcare professionals, International Nurses Day, Medics for Rare Disease, nurses, Nursing education, patient support, Rare Disease Awareness, rare disease nursing

It’s International Nurses Day and I would like to do a big shout out to our nursing friends out there! It is so important to recognise the extraordinary contribution nurses […]

24th April 2026

One doctor’s diagnostic odyssey

Emma Huskinson Medical Education, Rare Disease diagnostic delay, Diagnostic odyssey, medical education, Medics for Rare Disease, Patient Story, rare disease, UK healthcare

Doctors are highlighting the serious impact of diagnostic delay on individuals and their families living with rare conditions. Bringing the ‘Five Year Wait’ to life Today Medics for Rare Disease […]

16th January 2026

6 weeks until Rare Disease Day 2026

Emma Huskinson Medics for Rare Disease, Rare Disease Day Healthcare professionals, Learn your stripes, Medics for Rare Disease, NHS, Rare Disease Awareness, Rare Disease Day 2026, Rare Disease Training, show your stripes

Watch this space for the launch of our NEW mini training video and make sure you have your stripey socks at-the-ready because Rare Disease Day is looming! Rare Disease Day […]

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14th January 2026

Rare Disease Day 2026: #ShowYourStripes & #LearnYourStripes

Jo McPherson awareness campaign, Healthcare professionals, Learn your stripes, medical education, medical students, Medics for Rare Disease, NHS, Rare Disease Awareness, rare disease day, Rare Disease Day 2026, rare disease education, Rare Disease Training, rare diseases, show your stripes

Rare Disease Day 2026 is your chance to stand with the 3.5 million people in the UK living with a rare disease, and to take one small action that can […]

9th January 2026

Medics for Rare Disease Ambassador & Alumni Brew

Jo McPherson 2026 events, Ambassador program, Community event, Medics for Rare Disease, Networking, Online meetup, rare disease, rare disease advocacy, Virtual event, Volunteer ambassadors

Kick off the New Year with a cuppa and a catch-up at our New Year Ambassador Brew ☕ This relaxed, virtual get-together is a chance for our Ambassador community to […]

9th January 2026

Demystifying the connection between patients and researchers

Jo McPherson Inclusive research, Industry collaboration, King’s Health Partners, Medics for Rare Disease, Networking, Patient partnerships, PPIE, Rare disease research UK, Sickle Cell Disease, Translational research

Co-hosted by Medics for Rare Disease and King’s Health Partners Rare Disease Network 📅 Date: Friday 6 March 2026 ⏰ Time: 12:00 – 16:45 📍 Location: Great Hall, King’s College […]

Surgeons in scrubs wearing stripy socks for rare disease day

12th November 2025

Big Plans for Rare Disease Day 2026!

Emma Huskinson M4RD, Medical Education, Rare Disease Day, Uncategorised medical education, Medics for Rare Disease, NHS, rare conditions, rare disease, Rare Disease Day 2026, show your stripes

Get ready to #ShowYourStripes February 28th may seem like a long way off but behind the scenes, Medics for Rare Disease staff are deep in planning mode! It will be […]