Healthcare policy

16th June 2026

Rare Disease Quality Standards QS214

Emma Huskinson Healthcare education, Healthcare policy, Medical Education, Uncategorised Healthcare Policy, NICE, patient care, QS214, rare disease, Rare Disease Care, Rare Disease Quality Standard NICE QS214 Rare Disease Rare Disease Care Healthcare Policy Diagnosis Patient Care NHS 0

Rare Disease Quality Standards QS214 This year, NICE published the first ever Rare Disease Quality Standard (QS214). This was a huge milestone for the rare community. It was published at […]

13th May 2026

ABPI Annual Conference 2026: turning ambition into action

Sheela Upadhyaya Clinical Research, Conferences & Events, Healthcare policy, NHS, Rare Disease ABPI, ABPI Annual Conference, NHS, rare disease, UK life sciences

On 23rd April 2026 (tube strike day) I managed to navigate my way around London’s transport system to attended the ABPI Annual Conference representing Medics for Rare Disease. The conference […]