Rare Disease Awareness

22nd September 2026

A Proud Day at Westminster with Rare4Schools

Emma Huskinson Rare Disease Education Children and Young People, education, rare disease, Rare Disease Awareness, Rare4Schools, Westminster 0

Dr Emma Huskinson, Medical Comms Lead, shares her reflections on representing Medics for Rare Disease at the launch of Rare4Schools at Westminster. Tuesday was one of those days that I […]

28th July 2026

What Health Care Professionals Are Asking us About Rare Disease – and Why it Matters!

Lucy McKay Healthcare Professionals, Rare Disease Education Continuing professional development, Genetic conditions, genetics, Healthcare professionals, medical education, medical students, Medics for Rare Disease, Patient-centred care, rare disease, Rare Disease 101, Rare Disease Awareness, rare disease diagnosis

There are over 6,000 rare diseases, and while it is not possible for healthcare professionals to know about every individual condition, collectively rare diseases cause similar patterns of healthcare challenges. […]

26th June 2026

Reflections from ECRD 2026: Putting People at the Centre of Rare Disease Care

Helen Maginnis Healthcare policy, Rare Disease, UK Rare Disease Framework diagnosis, Diagnostic odyssey, ECRD 2026, European Conference on Rare Diseases, Eurordis, Healthcare professionals, Holistic care, Medics for Rare Disease, mental health, Patient-centred care, Rare Disease Awareness, Rare Disease Care, Rare disease policy, rare diseases

Earlier this month, I travelled to Prague with Lucy McKay and Sheela Upadhyaya to attend the 13th European Conference on Rare Diseases and Orphan Products (ECRD 2026) on behalf of […]

Nurses supporting patients with rare diseases on International Nurses Day

13th May 2026

International Nurses Day: Supporting Rare Disease Nursing

Emma Huskinson Healthcare education, Nursing, Rare Disease Global Nursing Network, Healthcare professionals, International Nurses Day, Medics for Rare Disease, nurses, Nursing education, patient support, Rare Disease Awareness, rare disease nursing

It’s International Nurses Day and I would like to do a big shout out to our nursing friends out there! It is so important to recognise the extraordinary contribution nurses […]

26th March 2026

Too Young, Too Rare: What My PBC Diagnosis Taught Me About Flexibility, Complexity, and Care

Taise Campbell Lived Experience, Patient Story, Rare Disease Autoimmune Disease, Chronic Liver Disease, patient advocacy, Primary Biliary Cholangitis, Rare Disease Awareness, rare diseases, Young Adults & Chronic Illness

Rare diseases are often defined as conditions affecting fewer than 1 in 2,000 people. Individually they are uncommon, but collectively they affect millions of people worldwide. Despite this, many people […]

5th March 2026

Thank you all for making Rare Disease Day 2026 our biggest yet

Emma Huskinson Awareness Campaigns, Rare Disease Day Healthcare professionals, Learn your stripes, medical education, NHS Awareness, Rare Disease Awareness, Rare disease community, Rare Disease Day 2026, rare disease education

Sending a huge thank you to all of you who helped to make Rare Disease Day 2026 so incredible. Once again you have overwhelmed us with our support, your creativity […]

28th February 2026

It’s Rare Disease Day!

Emma Huskinson Rare Disease Day Healthcare professionals, Learn your stripes, medical education, Medics for Rare Diseases, patient advocacy, rare conditions, Rare Disease Awareness, rare disease day, Rare Disease Day 2026, show your stripes

Happy Rare Disease Day everyone! We have been astounded by all of the engagement we have received for this year’s campaign already. Don’t forget to post your stripy sock photos […]

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20th February 2026

It’s officially the year of the horse… but remember to listen for zebra-hooves too!

Emma Huskinson Rare Disease Day Healthcare Education, Learn your stripes, medical students, Medical Training, Medics for Rare, Nursing education, patient advocacy, rare conditions, Rare Disease Awareness, rare disease day, Rare Disease Day 2026, show your stripes

Happy Lunar New Year! As we welcome the year of the horse, remember to show some support for their stripey counterparts. As you may know, there is an old rhetoric […]

16th January 2026

6 weeks until Rare Disease Day 2026

Emma Huskinson Medics for Rare Disease, Rare Disease Day Healthcare professionals, Learn your stripes, Medics for Rare Disease, NHS, Rare Disease Awareness, Rare Disease Day 2026, Rare Disease Training, show your stripes

Watch this space for the launch of our NEW mini training video and make sure you have your stripey socks at-the-ready because Rare Disease Day is looming! Rare Disease Day […]

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14th January 2026

Rare Disease Day 2026: #ShowYourStripes & #LearnYourStripes

Jo McPherson awareness campaign, Healthcare professionals, Learn your stripes, medical education, medical students, Medics for Rare Disease, NHS, Rare Disease Awareness, rare disease day, Rare Disease Day 2026, rare disease education, Rare Disease Training, rare diseases, show your stripes

Rare Disease Day 2026 is your chance to stand with the 3.5 million people in the UK living with a rare disease, and to take one small action that can […]