Rare Disease Awareness

Nurses supporting patients with rare diseases on International Nurses Day

13th May 2026

International Nurses Day: Supporting Rare Disease Nursing

Emma Huskinson Healthcare education, Nursing, Rare Disease Global Nursing Network, Healthcare professionals, International Nurses Day, Medics for Rare Disease, nurses, Nursing education, patient support, Rare Disease Awareness, rare disease nursing 0

It’s International Nurses Day and I would like to do a big shout out to our nursing friends out there! It is so important to recognise the extraordinary contribution nurses […]

26th March 2026

Too Young, Too Rare: What My PBC Diagnosis Taught Me About Flexibility, Complexity, and Care

Taise Campbell Lived Experience, Patient Story, Rare Disease Autoimmune Disease, Chronic Liver Disease, patient advocacy, Primary Biliary Cholangitis, Rare Disease Awareness, rare diseases, Young Adults & Chronic Illness

Rare diseases are often defined as conditions affecting fewer than 1 in 2,000 people. Individually they are uncommon, but collectively they affect millions of people worldwide. Despite this, many people […]

5th March 2026

Thank you all for making Rare Disease Day 2026 our biggest yet

Emma Huskinson Awareness Campaigns, Rare Disease Day Healthcare professionals, Learn your stripes, medical education, NHS Awareness, Rare Disease Awareness, Rare disease community, Rare Disease Day 2026, rare disease education

Sending a huge thank you to all of you who helped to make Rare Disease Day 2026 so incredible. Once again you have overwhelmed us with our support, your creativity […]

28th February 2026

It’s Rare Disease Day!

Emma Huskinson Rare Disease Day Healthcare professionals, Learn your stripes, medical education, Medics for Rare Diseases, patient advocacy, rare conditions, Rare Disease Awareness, rare disease day, Rare Disease Day 2026, show your stripes

Happy Rare Disease Day everyone! We have been astounded by all of the engagement we have received for this year’s campaign already. Don’t forget to post your stripy sock photos […]

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20th February 2026

It’s officially the year of the horse… but remember to listen for zebra-hooves too!

Emma Huskinson Rare Disease Day Healthcare Education, Learn your stripes, medical students, Medical Training, Medics for Rare, Nursing education, patient advocacy, rare conditions, Rare Disease Awareness, rare disease day, Rare Disease Day 2026, show your stripes

Happy Lunar New Year! As we welcome the year of the horse, remember to show some support for their stripey counterparts. As you may know, there is an old rhetoric […]

16th January 2026

6 weeks until Rare Disease Day 2026

Emma Huskinson Medics for Rare Disease, Rare Disease Day Healthcare professionals, Learn your stripes, Medics for Rare Disease, NHS, Rare Disease Awareness, Rare Disease Day 2026, Rare Disease Training, show your stripes

Watch this space for the launch of our NEW mini training video and make sure you have your stripey socks at-the-ready because Rare Disease Day is looming! Rare Disease Day […]

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14th January 2026

Rare Disease Day 2026: #ShowYourStripes & #LearnYourStripes

Jo McPherson awareness campaign, Healthcare professionals, Learn your stripes, medical education, medical students, Medics for Rare Disease, NHS, Rare Disease Awareness, rare disease day, Rare Disease Day 2026, rare disease education, Rare Disease Training, rare diseases, show your stripes

Rare Disease Day 2026 is your chance to stand with the 3.5 million people in the UK living with a rare disease, and to take one small action that can […]

9th January 2026

Medics for Rare Disease Ambassador Rare 101: Train the Trainer

Jo McPherson Ambassador Workshop, Healthcare Education, Medical Student Training, Medical Training, Online Training, Rare Disease 101, rare disease advocacy, Rare Disease Awareness, Rare Disease Session, Rare Disease Training

Learn how to deliver engaging Rare Disease 101 talks with tips, resources, and insights from experienced ambassadors. Thinking of running a Rare 101 training session in 2026? Whether you’re planning […]