Rare Disease Awareness Archives - Medics For Rare Disease

Rare Disease Awareness

Illustrations from NHS England's sickle cell and thalassaemia educational resources for schools and educators.

4th November 2026

Why Rare Disease Awareness Must Extend Beyond Healthcare

Layan Allawi Rare Disease Awareness education, Health inequalities, MfRD Ambassadors, NHS England, patient advocacy, Rare Disease Awareness, Sickle Cell Disease, Thalassaemia 0

Rare disease awareness shouldn’t stop at the hospital doors. MfRD Ambassador Dr Layan Allawi reflects on why accessible information and practical support are essential in education, and shares two new NHS learning resources designed to help schools better support students living with sickle cell disease and thalassaemia.