rare aware

9th October 2026

A new Rare Aware chapter for Medics for Rare Disease

Jo McPherson News Lucy mckay, Medics for Rare Disease, rare aware, Rare Disease Awareness, rare disease education 0

Medics for Rare Disease Chief Executive Officer to move on 15 years after founding original organisation Thank you, Lucy: A new chapter for Medics for Rare Disease Dr Lucy McKay will be moving on from her role as Chief Executive […]

1st October 2026

Reflecting on the Celebratory Symposium on Childhood Rare Disease Research

Megan Barnes Conferences & Events, News, Rare Disease Education BPSU, childhood rare disease, Healthcare professionals, Paediatric rare disease, rare aware, rare disease education, Rare Disease Research, UCL Great Ormand Street Institute of Child Health

Reflections from a celebratory symposium at UCL exploring childhood rare disease research, paediatric surveillance, whole-family care and the growing demand for rare disease education.