Rare Disease Education

22nd September 2026

A Proud Day at Westminster with Rare4Schools

Emma Huskinson Rare Disease Education Children and Young People, education, rare disease, Rare Disease Awareness, Rare4Schools, Westminster 0

Dr Emma Huskinson, Medical Comms Lead, shares her reflections on representing Medics for Rare Disease at the launch of Rare4Schools at Westminster. Tuesday was one of those days that I […]

28th July 2026

What Health Care Professionals Are Asking us About Rare Disease – and Why it Matters!

Lucy McKay Healthcare Professionals, Rare Disease Education Continuing professional development, Genetic conditions, genetics, Healthcare professionals, medical education, medical students, Medics for Rare Disease, Patient-centred care, rare disease, Rare Disease 101, Rare Disease Awareness, rare disease diagnosis

There are over 6,000 rare diseases, and while it is not possible for healthcare professionals to know about every individual condition, collectively rare diseases cause similar patterns of healthcare challenges. […]