External Event

16th July 2026

2nd European Congress on Rare Diseases & Orphan Drugs

Jo McPherson clinicians, European rare disease congress, External Event, Healthcare professionals, London events, medical education, orphan drugs, patient advocacy, Rare Disease Conference, Rare Disease Research, rare diseases, researchers

The 2nd European Congress on Rare Diseases & Orphan Drugs, organised by C2P Forum, brings together researchers, clinicians, industry leaders, policymakers and patient advocates to explore the latest advances in […]

16th July 2026

Future for Rare Online Webinar

Jo McPherson External Event, Future for Rare, Genetic Alliance UK, Healthcare professionals, patient advocacy, rare disease, Rare disease policy, webinar

Join our friends at Genetic Alliance UK for this online webinar exploring the future of rare conditions policy across the UK. The Future for Rare campaign is gathering views from […]