A Puff of Smoke
Sarah Lippett spent eleven years suffering with symptoms from an unknown condition, until she was diagnosed with the rare disease, Moyamoya, at the age of 17. This November she is […]
patient
The 33rd symposium: Cystic fibrosis in children and adults
This unique and multi-specialist event will look at and teach paediatricians how to be vigilant and confident when diagnosing masked and irrelevant signs and symptoms of illness or disease.
RAREsummit19
RAREsummit19 is a 1 day summit focusing on patient centricity in rare disease – mastery, opportunities and trends in the drug development process, healthcare and assistive technologies.
Winner of Student Voice Essay Competition 2018 to Speak at M4RD’s The Unusual Suspects
The M4RD team were really happy to work with Findacure on The Student Voice Essay Competition once again. This annual competition is a great opportunity to engage the clinicians of the future in the field of rare diseases. It is always so encouraging to read the submitted essays which demonstrate the kind of open-minded approach that we feel is needed when caring for people with rare diseases.
Dementia Strikes Children Too
This week a brilliant campaign was launched to raise awareness of childhood dementia