event

28th February 2023

#showyourstripes for Rare Disease Day 2023 Gallery!

m4rd daretothinkrare, event, Gallery, M4RD, Rare Disease Day gallery, M4RD, rare disease day, showyourstripes

Thanks so much to everyone for getting involved with this year’s Rare Disease Day! It’s been amazing how many of you have shown your stripes and they all look fantastic! […]

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1st February 2023

7 Ways you can gear up for Rare Disease Day on February 28th 2023

Eleanor Churchill disease, event, M4RD Events, Rare Disease Day, raredisease, Uncategorised events, M4RD, rare disease day

Rare disease day highlights the impact of rare disease on millions of people all around the world. There’s loads of ways you can get involved to support this incredible day, […]

20th May 2021

The Unusual Suspects: rare disease in everyday medicine

Jo McPherson conference, daretothinkrare, event, M4RD Events, Video collaboration, dare to think rare, emotive, M4RD, medical education, rare disease, royal society of medicine, the unusual suspects

emotive Reviews ‘The Unusual Suspects’ M4RD has continued to work closely with emotive – an independent, award winning global healthcare communications agency. Emotive were greatly involved in helping us bring […]

15th June 2020

The rare disease patient journey in 2030

Jo McPherson conference, daretothinkrare, doctor, event, medicalstudent, raredisease, Uncategorised ECRD, Eurordis, patient journey

Thanks to the wonders of modern technology and an amazingly powerful online platform #ECRD2020 took place virtually on 14th & 15th May. The conference was organised to take place in […]

24th March 2020

The Unusual Suspects: Rare diseases in everyday medicine #M4RD2020

Jo McPherson conference, daretothinkrare, event, M4RD Events, Video collaboration, emotive, M4RD

emotive Reviews ‘The Unusual Suspects’ During the past year M4RD has been working closely with emotive – an independent, award winning global healthcare communications agency – who have helped us […]

2nd October 2019

A Puff of Smoke

Jo McPherson disease, event, patient book launch, event, exhibition, patient, rare disease, workshop

Sarah Lippett spent eleven years suffering with symptoms from an unknown condition, until she was diagnosed with the rare disease, Moyamoya, at the age of 17. This November she is […]

16th August 2019

30% Project: A Conversation About Baby and Child Death

Lucy McKay disease, doctor, event, Family support, Gallery, patient, raredisease, Uncategorised 30%, 30% project, ceri, houses of parliament, Photography, Same but different

Same But Different is starting the conversation about baby and child death with their newest exhibit ‘30% Project’. It raises awareness of the statistic that 30% of those diagnosed with a rare disease will die before their 5th birthday.