ABOUT M4RD M4RD exists to provide education and training targeted at medical professionals, enabling them to improve diagnosis and care of people living with rare conditions. An estimated 3.5 million […]
Words that hurt It’s 2009 and my body is failing me. I had a flu that I never got over and it has left me weak,nauseous, breathless, and ravenously hungry. […]
On the 21st February our annual event The Unusual Suspects – Rare Disease in Everyday Medicine took place at The Royal Society of Medicine. The aim of the meeting was […]
Thanks so much to everyone for getting involved with this year’s Rare Disease Day! It’s been amazing how many of you have shown your stripes and we can’t thank you […]
Join Medics4RareDiseases (M4RD) and #ShowYourStripes for Rare Disease Day on 29th February, the rarest day of the year. Getting involved is easy, simply dig out some stripey socks, pop them […]
With just under two weeks until this year’s Student Voice Prize (SVP) closes, we’re making sure you guys are reminded about this fantastic opportunity and why you should get involved […]
This week, Mystery Monday focussed on Kabuki syndrome with thanks to the Kabuki syndrome foundation for the fantastic resources. 23 October is Kabuki syndrome awareness day! Kabuki syndrome is a […]
We’ve now brought Season 4 of The Rare Disease Podcast for Medics to a close and what a season it was! We’ve had some incredible guests and have discovered so […]
Rare disease day highlights the impact of rare disease on millions of people all around the world. There’s loads of ways you can get involved to support this incredible day, […]
Rare Diseases affect 3.5 million people in the UK. People with rare conditions take an average of FIVE years to reach a diagnosis. They often experience diagnostic delay because healthcare […]
