With just under two weeks until this year’s Student Voice Prize (SVP) closes, we’re making sure you guys are reminded about this fantastic opportunity and why you should get involved […]
This week, Mystery Monday focussed on Kabuki syndrome with thanks to the Kabuki syndrome foundation for the fantastic resources. 23 October is Kabuki syndrome awareness day! Kabuki syndrome is a […]
We’ve now brought Season 4 of The Rare Disease Podcast for Medics to a close and what a season it was! We’ve had some incredible guests and have discovered so […]
Rare disease day highlights the impact of rare disease on millions of people all around the world. There’s loads of ways you can get involved to support this incredible day, […]
Rare Diseases affect 3.5 million people in the UK. People with rare conditions take an average of FIVE years to reach a diagnosis. They often experience diagnostic delay because healthcare […]
