Words Matter by Emily Livesey
Words that hurt It’s 2009 and my body is failing me. I had a flu that I never got over and it has left me weak,nauseous, breathless, and ravenously hungry. […]
Words that hurt It’s 2009 and my body is failing me. I had a flu that I never got over and it has left me weak,nauseous, breathless, and ravenously hungry. […]
Medics4RareDiseases are proud to be a bronze sponsor for T-KASH: Transition – Knowledge and Skills in Healthcare, a new tool designed to support young people with rare and genetic conditions […]
Who are Unique? In the world of rare genetic conditions, understanding the intricacies of a specific disorder and accessing comprehensive information can be a daunting task for families and healthcare […]
Apply to be an M4RD Ambassador today… Our Ambassador Programme is now open to new applications – this is your chance to become an M4RD Ambassador and a rare disease […]
We’ve now brought Season 4 of The Rare Disease Podcast for Medics to a close and what a season it was! We’ve had some incredible guests and have discovered so […]
February was a busy month for M4RD!! Prior to Rare Disease Day we held our 10th annual symposium, with the Royal Society of Medicine on 15th February – our first […]
Are you a medical student? Are you undertaking work involving rare diseases? Your opinions could be invaluable for a research study looking into rare disease advocacy! What is it for? […]
by Nadine Jefferies The moments after a baby is born – already a rollercoaster of emotions for any parent –are only amplified if your baby has a rare condition. Lex […]
Hello, Nadine here, I’m back again! This time it’s to talk about rare disease policy. This month I attended Europe’s largest cell and gene therapy exhibition at the ExCel Centre.Among […]
We are close to our “3rd International Conference on Lysosomal Diseases” which takes place 20-21 April 2023, in London, UK. The conference is offering 35% DISCOUNT on registration fee to students […]