STUDY IDENTIFIES RED FLAGS OF RARE DISEASE
Published in Orphanet Journal of Rare Diseases 21st May 2024: A new study, by Medics4RareDiseases, has identified seven ‘red flags, or clinical clues, that point to a patient having an […]
Published in Orphanet Journal of Rare Diseases 21st May 2024: A new study, by Medics4RareDiseases, has identified seven ‘red flags, or clinical clues, that point to a patient having an […]
After an incredible year and half, I have decided to move on from working at Medics4RareDiseases. But before I go, I’d like to look back on my time at this […]
As a new clinical ambassador for M4RD, I eagerly anticipated the Unusual Suspects conference in London this year, and it certainly didn’t disappoint! Traveling from Chester donning my stripy socks, […]
We healthcare practitioners are privileged. Patients trust us with their stories, creating the space for us to participate in them. In my experience as a genetic counselling student, this is […]
Medics4RareDiseases and FOP Friends, in collaboration with the Hunterian Museum at the Royal College of Surgeons of England, hosted an evening reception for healthcare professionals, examining the contributions of patients […]
We are thrilled to announce a major development in rare disease education for healthcare professionals: four knowledge summaries were published to NHS England’s GeNotes before Rare Disease Day 2024, authored […]
Many people with a rare disease will tell you that it took years to get diagnosed, with an average time for diagnosis taking between 4 and 6 years. During this […]
Whilst we wait to hear who the winner and runner’s up are from The Student Voice Prize, we hear from Toni Oduwole who was one of the students paired in […]
JOIN US AT THE HUNTERIAN MUSEUM! Join Medics4RareDiseases and FOP Friends for a unique reception, at the prestigious Hunterian Museum, at the Royal College of Surgeons of England on 13th […]
Medics4RareDiseases is excited to announce that you can now register for our 11th annual symposium! The Unusual Suspects 2024: Rare Diseases in Everyday Medicine will take place on the afternoon […]