M4RD’s Rare Diseases 101 Study
Published in the Orphanet Journal of Rare Diseases Medics4RareDiseases is proud to announce another publication within the Orphanet Journal of Rare Diseases! The study evaluates Rare Diseases 101, an online […]
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Lunch and Learn look-back by Leah Brooksbank and Corrinne Hepworth
Our ambassadors Leah Brooksbank and Corrinne Hepworth attended M4RD’s lunch and learn session recently where they discussed their time at M4RD so far and also heard from a variety of […]
Hello from M4RD’s new Training Programme Manager
July was a busy month for M4RD, and marked my first couple of weeks with the team as Training Programme Manager! The capital of the north! Just a few days […]
STUDY IDENTIFIES RED FLAGS OF RARE DISEASE
Published in Orphanet Journal of Rare Diseases 21st May 2024: A new study, by Medics4RareDiseases, has identified seven ‘red flags, or clinical clues, that point to a patient having an […]
My time working for Medics4RareDiseases by Nadine Jefferies
After an incredible year and half, I have decided to move on from working at Medics4RareDiseases. But before I go, I’d like to look back on my time at this […]
The Unusual Suspects – A Masterclass In Rare Disease Communication by John Bassett
As a new clinical ambassador for M4RD, I eagerly anticipated the Unusual Suspects conference in London this year, and it certainly didn’t disappoint! Traveling from Chester donning my stripy socks, […]
My journey applying for the Student Voice Prize by Diya Porwal
We healthcare practitioners are privileged. Patients trust us with their stories, creating the space for us to participate in them. In my experience as a genetic counselling student, this is […]
Gallery: First, do no harm – Reflections on a rare bone disease
Medics4RareDiseases and FOP Friends, in collaboration with the Hunterian Museum at the Royal College of Surgeons of England, hosted an evening reception for healthcare professionals, examining the contributions of patients […]
Launch of rare disease content on GeNotes
We are thrilled to announce a major development in rare disease education for healthcare professionals: four knowledge summaries were published to NHS England’s GeNotes before Rare Disease Day 2024, authored […]
Breaking the Medical Preconception on Rare Diseases by Rebecca Giddings
Many people with a rare disease will tell you that it took years to get diagnosed, with an average time for diagnosis taking between 4 and 6 years. During this […]