daretothinkrare

29th September 2021

Not your usual heart attack

Jo McPherson daretothinkrare, disease, interview, medicalstudent, patient, raredisease, Uncategorised diagnosis, Heart, medical education, patient voice, rare disease, SCAD, Spontaneous Coronary Artery Dissection 0

Heart attacks may not be rare but SCAD is! Today is World Heart Day and although heart attacks may not be rare, there are other causes of heart attacks that […]

15th July 2021

Rare Disease 101: How it all began

danjeffries daretothinkrare, disease, Rare Disease 101 doctors in training, interactive course, M4RD, medical students, medics4rarediseases, online medical education, Rare Disease 101, RD101 2

The idea behind Rare Disease 101 When the idea of Rare Disease 101 was first mooted by Lucy McKay, my (slightly wonky) heart skipped a beat. I had been a […]

25th June 2021

Reflections on rare diseases: state of the nation 2021

Jo McPherson daretothinkrare, disease, raredisease, Report Baroness Blackwood, Public policy projects, rare disease, reflections on rare diseases, Report, State of the nation 0

Starting a conversation Back in 2019, Baroness Blackwood spoke at the British Paediatric Surveillance Unit (BPSU) rare disease summer tea party where she stated “we need national debate on rare […]

11th June 2021

Working together to share our message #DareToThinkRare

Jo McPherson daretothinkrare, patient, Patient Advocacy Groups, raredisease collaboration, daretothinkrare, patient advocacy, patient advocates, patient groups, Patients 0

We believe that asking doctors to #DareToThinkRare is fundamental to improving the experience of all patients living with rare diseases. And to eliminating the diagnostic odyssey. Working together to share […]

2nd June 2021

Thank you to our sponsors for supporting our work programme

Jo McPherson daretothinkrare, Rare Disease 101, raredisease, sponsors collaboration, M4RD, medics4rarediseases, RD101, sponsors, work programme 0

We would like to thank all our sponsors and donors for their generous support of M4RD’s 2021 work programme that includes further development of Rare Disease 101 and gathering data […]

20th May 2021

The Unusual Suspects: rare disease in everyday medicine

Jo McPherson conference, daretothinkrare, event, M4RD Events, Video collaboration, dare to think rare, emotive, M4RD, medical education, rare disease, royal society of medicine, the unusual suspects 0

emotive Reviews ‘The Unusual Suspects’ M4RD has continued to work closely with emotive – an independent, award winning global healthcare communications agency. Emotive were greatly involved in helping us bring […]

14th May 2021

Mystery Disease Monday is back #MDM

Jo McPherson daretothinkrare, Mystery Disease Monday, raredisease daretothinkrare, MDM, medical education, Mystery Disease Monday, patient advocacy, raising awarness, rare disease 0

You spoke and we listened!! We are pleased to announce that Mystery Disease Monday will be back from Monday 17th May and to mark the start of National Eosinophilic Awareness […]

11th May 2021

Rare Disease 101 fills the gap in medical education

Jo McPherson Ambassador, daretothinkrare, doctor, medicalstudent, Rare Disease 101 daretothinkrare, doctors in training, interactive tool, medical education, online education, Rare Disease 101, rare disease basics, RD101, tom dunne 0

Written by Dr Thomas Dunne, Trust Grade SHO in Paediatrics & M4RD Clinical Ambassador When reflecting on your experiences of undergraduate medical education on rare diseases, what comes to mind? […]

25th March 2021

I am number 17 campaign

Jo McPherson daretothinkrare, disease, interview, patient, raredisease I am number 17, Occipital horn syndrome, OHS 0

This week changemaker David Rose speaks with our CEO Lucy about what it is like to live with the ultra-rare disease occipital horn syndrome, advocacy efforts and the I am number 17 […]

16th February 2021

Rare Disease 101 is LIVE!

Jo McPherson daretothinkrare, disease, doctor, medicalstudent, Rare Disease 101, Uncategorised doctors in training, interactive tool, modules, online education, rare disease basics 0

Rare Disease 101 Today Medics4RareDiseases has launched its online, interactive e-learning platform dedicated to teaching medics the fundamentals of rare disease and help them manage both their undiagnosed and diagnosed […]