12 Tips To Learn About Rare Diseases
Agata Oliwa has recently finished her medical degree at the University of Glasgow. She has started the Specialist Academic Foundation Programme this summer in the North East. Agata aspires to […]
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What seems to be the problem?
Grace Knight studied medicine at Keele University and is about to become an F1 in Coventry. Her passion for improving rare disease education was sparked by her younger brothers’ rare […]
Westminster, Rare Collaboration and Rare Diseases Action Plan 2022
Last Monday I attended a reception at the House of Commons to celebrate the 40th anniversary of the Society for Mucopolysaccharide Disease, or MPS. MPS is a member of the […]
Become an M4RD Ambassador and a Rare Disease Ally
Our Ambassador Programme is now open to new applications – this is your chance to become an M4RD Ambassador and a rare disease ally! About our programme Our ambassador programme […]
Rare Disease 101 fills the gap in medical education
Written by Dr Thomas Dunne, Trust Grade SHO in Paediatrics & M4RD Clinical Ambassador When reflecting on your experiences of undergraduate medical education on rare diseases, what comes to mind? […]
Rare Disease 101 is LIVE!
Rare Disease 101 Today Medics4RareDiseases has launched its online, interactive e-learning platform dedicated to teaching medics the fundamentals of rare disease and help them manage both their undiagnosed and diagnosed […]
Priority Two: The key to unlocking The UK Rare Diseases Framework
Written by Dr Lucy McKay, CEO of Medics4RareDiseases The new UK Rare Diseases Framework has identified four key priority areas for addressing the challenges faced by those living with a […]
Rare Disease 101 Sneak-Peek
Rare Disease 101 Today Medics4RareDiseases has realised a long-term goal: we have created Rare Disease 101 training for medical professionals. RD101 is an online and interactive education module created for […]
Similarities & Differences in Genetic Counselling in the UK and South Africa
Melissa Clasen, genetic counsellor, has recently moved from South Africa to work in London. In this article she discusses some of the unique differences in access to care, support and […]
New Online Tool for Assessing COVID-19 Risk in People With Rare Genetics Diseases
UCL Great Ormond Street Institute of Child Health has responded to the considerable anxiety and confusion among many people living with rare diseases about their level of risk from COVID-19 and the […]