We’re looking for a Trustee with lived experience of rare disease to join the Medics for Rare Disease Board.

This is an exciting opportunity to help shape our strategic direction and ensure the voices of people living with rare conditions remain at the heart of everything we do.

Whether you’re an experienced Trustee or are considering your first Board role, we’d love to hear from you. We provide a full induction, Trustee training and ongoing support to help you make a meaningful contribution.

How to Apply

Please complete our Google application form and upload:

• Your CV
• A short covering statement explaining why you would like to become an MfRD Trustee and what you feel you could bring to the role.

Apply here: https://forms.gle/ikAXA1pABNNFzDuv7

We want our application process to be as accessible as possible. If completing the form in writing is difficult, or you would prefer to apply in a different format, please get in touch. We’d be happy to discuss alternative ways for you to submit your application.

Key Dates

• Applications close: 5.00pm on Friday 31 July 2026
• Successful applicants notified by: Friday 7 August 2026
• Interviews: Week commencing 10 August 2026

If you have any questions about the role or the application process, please contact Jo McPherson at jo@m4rd.org.

We look forward to hearing from you and welcoming a new Trustee to the Medics for Rare Disease Board.