1 Comment

  1. Bridgit Rigby
    4th June 2019 @ 7:44 pm

    Thank you Sarah and Jo for highlighting CSID and the difficult journeys family have to endure to reach a diagnosis.
    Our family story was similar, diagnosis for my daughter at the age 9, many years ago.
    It made me really sad to hear what you had gone though and reminded me of all the challenges and struggles we had faced, along with many others.
    So pleased to read that you had treatment for Millie and hope she continues to thrive, I hope that sharing your story will help to make a difference, for patients and families of rare diseases.


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