More Than You Can Imagine: Genomics and Rare Disease
February 27 @ 12:00 pm - 2:00 pm
Join Central and South Genomics for an insightful webinar in recognition of Rare Disease Day, where they will bring together patients, healthcare professionals, and researchers to explore the latest in patient advocacy, genomics and rare disease. This event is for everyone, whether you’re from a healthcare background, have been affected by a rare disease, or are just keen to learn more.
This session will cover key topics, including:
* Understanding rare diseases and genomics – How advances in genetics are shaping diagnosis and treatment.
* History of rare disease – How rare disease diagnosis has changed through time.
* Patient experiences – Real-life stories that highlight the journey from diagnosis to treatment.
* Support networks & advocacy – Connecting patients with resources for ongoing care.
You’ll hear from a range of experts, from clinicians to charity representatives and patient advocates.
This website uses cookies to improve your experience. We'll assume you're ok with this, but you can opt-out if you wish. Cookie settingsACCEPT
Privacy & Cookies Policy
Privacy Overview
This website uses cookies to improve your experience while you navigate through the website. Out of these cookies, the cookies that are categorized as necessary are stored on your browser as they are as essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may have an effect on your browsing experience.
Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
Join Central and South Genomics for an insightful webinar in recognition of Rare Disease Day, where they will bring together patients, healthcare professionals, and researchers to explore the latest in patient advocacy, genomics and rare disease. This event is for everyone, whether you’re from a healthcare background, have been affected by a rare disease, or are just keen to learn more.
This session will cover key topics, including:
* Understanding rare diseases and genomics – How advances in genetics are shaping diagnosis and treatment.
* History of rare disease – How rare disease diagnosis has changed through time.
* Patient experiences – Real-life stories that highlight the journey from diagnosis to treatment.
* Support networks & advocacy – Connecting patients with resources for ongoing care.
You’ll hear from a range of experts, from clinicians to charity representatives and patient advocates.
If you have any queries, please contact Vicki.Geddes@uhb.nhs.uk
Details
Venue
Organiser