Rare Diseases in Dermatology: Parent perspective – life with Xeroderma Pigmentosum
March 22 @ 6:00 pm - 7:00 pm
Nicola Miller will be talking about her experiences of caring for her son, who has a rare skin condition, Xeroderma Pigmentosum, and how clinicians can improve care for children with rare conditions and their families.
Barts & The London Rare Disease Society are excited to welcome Nicola Miller, founder of the Teddington Trust, a rare disease patient support charity, and Editor of Rare Revolution magazine to their next webinar.
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