A Puff of Smoke Talk and Workshop w/ author and artist Sarah Lippett
The Centre for Better Health 1A Darnley Road, London, United KingdomJoin author and artist Sarah Lippett to explore the power of sequential narrative.
£5.98 – £7.50
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Hit and Miss: Genetic diagnosis, misdiagnosis and learning
Kings College London Guys Campus New Hunt's House, London, United KingdomA potpourri of genetic diagnosis, misdiagnosis and learning experiences
Rare disease spotlight: Aspergillosis
Barts & The London School of Medicine - Garrod Building London, United KingdomShining the light on Aspergillosis
The unusual suspects: rare diseases in everyday medicine
Royal Society of Medicine 1 Wimpole Street, London, United KingdomMedics 4 Rare Diseases and the RSM will bring a faculty of top speakers to explore how rare diseases are relevant in everyday clinical medicine
Drug Repurposing for Rare Diseases 2020 Conference
America Square Conference Centre 17 America Square, London, United KingdomFindacure's Drug Repurposing for Rare Diseases Conference is returning for its seventh consecutive year!
£37.39 – £94.59
Medicine and Me: Living with pulmonary fibrosis
Royal Society of Medicine 1 Wimpole Street, London, United KingdomJointly organised with Action for Pulmonary Fibrosis, this meeting will give you an understanding of what it is like to live with Idiopathic Pulmonary Fibrosis (IPF) from people living with the disease. Pulmonary fibrosis (PF) is thought to affect around 70,000 people in the UK. One of the most aggressive and common forms of PF is Idiopathic Pulmonary […]
£40
The 10th European Conference on Rare Diseases & Orphan Products (ECRD)
ONLINEPeople living with a rare disease have the right to reach their highest potential of well-being; join us online for ECRD 2020 to take part in discussions to inform and build the future ecosystem for rare disease policies and services.
to be reviewed
COVID-19 and rare diseases: Risks and opportunities posed by the pandemic
WebinarThis unique webinar unites experts from primary care, advocacy and medical genetics within the rare disease sector to discuss the impact of the virus on the rare disease community. Participants will hear about the short and long-term impact of shielding, consider how to best protect vulnerable populations in the future, and reflect on the potential […]
Free webinar
Educating physicians in rare disease – Reducing the diagnostic odyssey and improving outcomes
WebinarThis webinar will introduce Medics 4 Rare Diseases whose mission is to drive an attitude change towards rare diseases amongst medical students and doctors in training. In addition Lucy McKay, CEO of Medics 4 Rare Diseases and Gavin Jones, Director of Rare Disease, will be discussing core educational principles required to deliver better patient experience […]
Wolfram Syndrome virtual conference
OnlinePlanning is ongoing for The Wolfram Syndrome UK's 9th annual conference, which this year will now be a virtual conference on Zoom taking place over two days: Saturday 19th and Saturday 26th September. 19th September 2.00-3.00 pm Urology Presentation – Mr Liam McCarthy from Birmingham Children’s Hospital 26th September 9.30-10.15am Ophthalmology workshop #1 – Talia […]