Haematology
Alongside the British Society for Haematology this session will discuss management of sickle cell disease and the appropriate use of blood components. It will also explore diagnostic work up for […]
10 events found.
Conference
Events
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Connecting the Dots: Oxford University Student Rare Disease Conference 2025
Magdalen College, University of OxfordThe Oxford Rare Disease Society (OxRare) and the Sherrington Society are excited to welcome you to “Connecting the Dots” – our first Oxford University Student Rare Disease Conference, taking place […]
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More Than You Can Imagine: Genomics and Rare Disease
ONLINEJoin Central and South Genomics for an insightful webinar in recognition of Rare Disease Day, where we bring together patients, healthcare professionals, and researchers to explore the latest in patient advocacy, genomics and rare disease. This event is for everyone, whether you're from a healthcare background, have been affected by a rare disease, or are […]
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Swansea Rare Disease Study Day
Morriston Hospital Education Centre Heol Maes Eglwys Treforys SA6 6NLDive deep into the world of rare diseases at the first Swansea Rare Disease Study Day on 8th March 2025! Why attend? Gain invaluable insights from our expert guest speakers. Learn from our engaging panel discussions. Meet a range of local patient advocacy groups to discover more about the lived reality of those impacted by […]
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Soft UK Healthcare Professionals Seminar
Holiday Inn, BirminghamSOFT UK invites healthcare professionals to a transformative seminar focused on the power of language in supporting families navigating rare genetic diagnoses and ongoing care. This event offers a unique blend of expert insights and heartfelt personal stories, equipping attendees with practical tools to foster meaningful and compassionate dialogue. By attending, you will: Develop your […]
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Genomics in Primary Care: What GPs need to know
ONLINEGenomic medicine has a significant impact within the field of primary care. Generally acting as the gateway to the NHS and specialised services, primary care practitioners are crucial in the early identification of genetic conditions and in ensuring appropriate management of a range of conditions. Genomics features in everyday primary care practice in a range […]
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Recommendation Writing Workshop
Edgbaston Park HotelMonday 23rd June 9.30 - 4pm at Edgbaston Park Hotel. LIMITED PLACES - reserve your spot now! Welcome to the IAG2 Face to Face Meeting! Medics for Rare Disease has a vision of healthcare equity for everyone. We have been working with the Department of Health and Social Care since 2018 in order to achieve […]
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Our Voices, Our Stories: Lived Experiences of Genomic Testing
ONLINEGenomic testing is a complex clinical topic, with new developments and discoveries taking place at a rapid rate. Often, we focus predominantly on the clinical and scientific aspects of genomics, but it’s crucial to remember that each advancement has life-changing impacts on people across the world. In this webinar, we'll be exploring the lived experiences […]
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Introduction to Delphi Studies
ONLINEHave you ever heard of a Delphi Study and not quite sure what it entails? Or maybe you have never heard of Delphi? This webinar will be providing training on what a Delphi Study is and how they are run. PhD Candidate, Shams Al-Ani, studying Pharmaceutical medicine and regulatory affairs at Centre for Pharmaceutical Medicine […]
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RAREsummit25: CamRARE at 10 – Connecting Moments
Wellcome Genome Campus Conference Centre2025 marks a special milestone — CamRARE’s 10th anniversary. A decade of progress. A future of possibilities. Over the past decade, we have championed collaboration, amplified patient voices, and driven progress in rare disease research, policy, and innovation. Through inspiring keynotes, dynamic discussions and workshops, and interactive networking opportunities, we will reflect on the past […]