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  • living rare forum

    Living Rare Forum

    Renaissance Downtown Hotel Washington DC

    Hosted at the Renaissance Downtown Hotel, the rare disease community will come together in Washington DC for a day of learning, networking and fun! Hear real stories from the community […]

  • EDIRA ‘Let’s COCO: Celebrating the Doers

    Edgbaston Park Hotel

    A Hybrid event celebrating DOERS who showcase their Collaboration - Outreach - Co-creation projects with impactful Outcomes. This is your chance to be part of a dynamic, hybrid gathering.

  • Brew & Banter: Alumni Edition

    ONLINE

    Join our Medics for Rare Disease alumni online meetup: Brew & Banter Edition! ☕💬 Reconnect with fellow alumni in this relaxed virtual catch-up. Hear updates from our current ambassadors, share […]

  • European Conference on Rare Diseases & Orphan Products (ECRD 2026)

    O2 universum Congress Centre Českomoravská 2345/17, Libeň, Prague, Czech Republic

    🗓 Date: 2–4 June 2026 📍 Location: Prague & Online 🔗 Register: Sign up here Join EURORDIS‑Rare Diseases Europe for the largest patient‑led rare disease policy event in Europe! Over […]