Living Rare Forum
Hosted at the Renaissance Downtown Hotel, the rare disease community will come together in Washington DC for a day of learning, networking and fun! Hear real stories from the community […]
Hosted at the Renaissance Downtown Hotel, the rare disease community will come together in Washington DC for a day of learning, networking and fun! Hear real stories from the community […]
A Hybrid event celebrating DOERS who showcase their Collaboration - Outreach - Co-creation projects with impactful Outcomes. This is your chance to be part of a dynamic, hybrid gathering.
Join our Medics for Rare Disease alumni online meetup: Brew & Banter Edition! ☕💬 Reconnect with fellow alumni in this relaxed virtual catch-up. Hear updates from our current ambassadors, share your experiences, and explore ways to support and mentor the next generation of Medics for Rare Disease ambassadors. We’d love your input on the format […]
🗓 Date: 2–4 June 2026 📍 Location: Prague & Online 🔗 Register: Sign up here Join EURORDIS‑Rare Diseases Europe for the largest patient‑led rare disease policy event in Europe! Over […]