Public health

Name: Rare Disease, NF1 and Primary Care: Research Workshop
Start: 2026-03-13T09:30:00+00:00
End: 2026-03-13T16:00:00+00:00
Location: Engine Rooms

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0 events 9 0 events, 9	0 events 10 0 events, 10	0 events 11 0 events, 11	0 events 12 0 events, 12	1 event 13 1 event, 13 9:30 am - 4:00 pm Rare Disease, NF1 and Primary Care: Research Workshop March 13 @ 9:30 am - 4:00 pm Rare Disease, NF1 and Primary Care: Research Workshop This interactive research development workshop brings together clinicians, academics, researchers and industry partners to explore how primary care can better support people living with rare diseases. Using neurofibromatosis type 1 (NF1) as an exemplar condition, the session will examine early recognition, diagnostic pathways, care coordination, and opportunities for research using routinely collected data and digital health tools. Participants will collaborate to identify evidence gaps and develop a patient-centred research agenda grounded in everyday primary-care practice.	0 events 14 0 events, 14	0 events 15 0 events, 15
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