Join author and artist Sarah Lippett to explore the power of sequential narrative.
Jointly organised with Action for Pulmonary Fibrosis, this meeting will give you an understanding of what it is like to live with Idiopathic Pulmonary Fibrosis (IPF) from people living with the disease. Pulmonary fibrosis (PF) is thought to affect around 70,000 people in the UK. One of the most aggressive and common forms of PF is Idiopathic Pulmonary […]
This unique webinar unites experts from primary care, advocacy and medical genetics within the rare disease sector to discuss the impact of the virus on the rare disease community. Participants will hear about the short and long-term impact of shielding, consider how to best protect vulnerable populations in the future, and reflect on the potential […]
This webinar will introduce Medics 4 Rare Diseases whose mission is to drive an attitude change towards rare diseases amongst medical students and doctors in training. In addition Lucy McKay, CEO of Medics 4 Rare Diseases and Gavin Jones, Director of Rare Disease, will be discussing core educational principles required to deliver better patient experience […]
Planning is ongoing for The Wolfram Syndrome UK's 9th annual conference, which this year will now be a virtual conference on Zoom taking place over two days: Saturday 19th and Saturday 26th September. 19th September 2.00-3.00 pm Urology Presentation – Mr Liam McCarthy from Birmingham Children’s Hospital 26th September 9.30-10.15am Ophthalmology workshop #1 – Talia […]