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February 2019

Rare Disease Day 2019

February 28
Rare Disease Day 2019 M4RD

28 February 2019 will be the twelfth international Rare Disease Day coordinated by EURORDIS.

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March 2019

A Talk On Haemophilia

March 18 @ 6:00 pm - 8:00 pm
New Hunt’s House Library, Guy's Campus
London,
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Free

KCL MedGenSoc presents: A Talk on Haemophilia We are honoured to be hosting no less than two guest speakers for this event; KCH Haematology Consultant Dr Catherine Rea, who specialises in clotting disorders YouTuber Luke Pembroke, who himself suffers from Haemophilia Refreshments will be served before and after the talk. A sign up for a certificate of attendance will be available at the end of the lecture. As always, external staff and students are more than welcome to attend, but…

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May 2019

Rare diseases and the Kidney

May 8 @ 8:45 am - 5:00 pm
Royal Society of Medicine, 1 Wimpole Street
London, W1G 0AE United Kingdom
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£20

Hear expert nephrologists from clinical and academic fields present the latest updates and developments in a variety of rare disease areas.

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PKU: A Heads Up

May 24 @ 9:30 am - 4:00 pm
Salford Royal Hospitals NHS Foundation Trust, Stott Lane, Salford
Manchester, M6 8HD United Kingdom
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Free

Leading experts will explore the pathophysiology of PKU, the impact of high phenylalanine levels on the brain of adult patients and the effect of PKU and aging.

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June 2019

Epigenetics: The Emerging Key Player in Medicine

June 10 @ 8:30 am - 5:30 pm
Royal Society of Medicine, 1 Wimpole Street
London, W1G 0AE United Kingdom
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£25

Well-known experts in the epigenetics world such as; Professor Wolf Reik, Professor Stephan Beck, Professor Sir Adrian Bird, and Dr Nessa Carey will come together and give awe-inspiring talks across the epigenetics spectrum.

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Managing complex neurological disorders in the community

June 25 @ 9:30 am - 5:00 pm
Council House, Birmingham, Council House, Victoria Square
Birmingham, B1 1BB United Kingdom
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£55.00

This conference will delve into some of the perceived mysteries and issues associated with ‘complex’ neurological conditions, in an attempt to make them less ‘complex’, and help you to address some of the unmet care needs of the people living complex neurological disorders.

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Health Horizons: Future Healthcare Forum

June 27 @ 4:00 pm - 6:00 pm
Corpus Christi College Lecture Theatre, Trumpington Street
Cambridge, CB2 1RH United Kingdom
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£11.67

CRDN are hosting a Rare Disease session as part of the new Cambridge Biotech Week Health Horizons Forum.Health Horizons is a high calibre, two-day conference focusing on the future of the healthcare industry. Created by the Global Innovation Forum.

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July 2019

BPSU Tea Party

July 10 @ 1:30 pm - 5:00 pm
Royal College of Paediatrics and Child Health, 5-11 Theobalds Road
London, WC1X 8SH United Kingdom
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Free

The British Paediatric Surveillance Unit invites you to this year's event to enjoy afternoon tea and cakes, hear young people speak about their experience of living with rare disease and visit informational stands.

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August 2019

The Cambridge Rare Disease Showcase

August 8 @ 6:45 pm - 9:00 pm
Espresso Library, 210 East Road
Cambridge, Cambridgeshire CB1 1BG United Kingdom
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Free – £21.79

Join Findacure for the annual Cambridge Rare Disease Showcase – a relaxed and informal networking evening in one of the UK’s most prominent scientific hubs.

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The Manchester Rare Disease Showcase

August 8 @ 6:45 pm - 9:00 pm
The Bridgewater Hall, Lower Mosley Street
Manchester, Lancashire M2 3WS United Kingdom
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Free – £21.79

Join Findacure for The Manchester Rare Disease Showcase – a day long conference celebrating rare disease developments in Manchester and North West England.

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