February 2019
Rare Disease Day 2019
28 February 2019 will be the twelfth international Rare Disease Day coordinated by EURORDIS.
Find out more »March 2019
A Talk On Haemophilia
KCL MedGenSoc presents: A Talk on Haemophilia We are honoured to be hosting no less than two guest speakers for this event; KCH Haematology Consultant Dr Catherine Rea, who specialises in clotting disorders YouTuber Luke Pembroke, who himself suffers from Haemophilia Refreshments will be served before and after the talk. A sign up for a certificate of attendance will be available at the end of the lecture. As always, external staff and students are more than welcome to attend, but…
Find out more »May 2019
Rare diseases and the Kidney
Hear expert nephrologists from clinical and academic fields present the latest updates and developments in a variety of rare disease areas.
Find out more »PKU: A Heads Up
Leading experts will explore the pathophysiology of PKU, the impact of high phenylalanine levels on the brain of adult patients and the effect of PKU and aging.
Find out more »June 2019
Epigenetics: The Emerging Key Player in Medicine
Well-known experts in the epigenetics world such as; Professor Wolf Reik, Professor Stephan Beck, Professor Sir Adrian Bird, and Dr Nessa Carey will come together and give awe-inspiring talks across the epigenetics spectrum.
Find out more »Managing complex neurological disorders in the community
This conference will delve into some of the perceived mysteries and issues associated with ‘complex’ neurological conditions, in an attempt to make them less ‘complex’, and help you to address some of the unmet care needs of the people living complex neurological disorders.
Find out more »Health Horizons: Future Healthcare Forum
CRDN are hosting a Rare Disease session as part of the new Cambridge Biotech Week Health Horizons Forum.Health Horizons is a high calibre, two-day conference focusing on the future of the healthcare industry. Created by the Global Innovation Forum.
Find out more »July 2019
BPSU Tea Party
The British Paediatric Surveillance Unit invites you to this year's event to enjoy afternoon tea and cakes, hear young people speak about their experience of living with rare disease and visit informational stands.
Find out more »August 2019
The Cambridge Rare Disease Showcase
Join Findacure for the annual Cambridge Rare Disease Showcase – a relaxed and informal networking evening in one of the UK’s most prominent scientific hubs.
Find out more »The Manchester Rare Disease Showcase
Join Findacure for The Manchester Rare Disease Showcase – a day long conference celebrating rare disease developments in Manchester and North West England.
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