Rare Disease Day 2026: #ShowYourStripes & #LearnYourStripes
Rare Disease Day 2026 is your chance to stand with the 3.5 million people in the UK living with a rare disease, and to take one small action that can […]
10 events found.
Events
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Demystifying the connection between patients and researchers
Kings College London Great Hall, King’s College London – Strand Campus, London, London, United KingdomCo-hosted by Medics for Rare Disease and King’s Health Partners Rare Disease Network 📅 Date: Friday 6 March 2026 ⏰ Time: 12:00 – 16:45 📍 Location: Great Hall, King’s College […]
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Rare Disease, NF1 and Primary Care: Research Workshop
Engine Rooms Birchwood Park, Warrington, CheshireThis interactive research development workshop brings together clinicians, academics, researchers and industry partners to explore how primary care can better support people living with rare diseases. Using neurofibromatosis type 1 (NF1) as an exemplar condition, the session will examine early recognition, diagnostic pathways, care coordination, and opportunities for research using routinely collected data and digital health tools. Participants will collaborate to identify evidence gaps and develop a patient-centred research agenda grounded in everyday primary-care practice.
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Swansea Rare Disease Study Day
Morriston Hospital Education Centre Heol Maes Eglwys Treforys SA6 6NLMedics for Rare Disease is proud to support the Swansea Rare Disease Study Day, hosted alongside Swansea University. This free event brings together clinical experts, patient speakers, and multiple charities […]
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European Conference on Rare Diseases & Orphan Products (ECRD 2026)
O2 universum Congress Centre Českomoravská 2345/17, Libeň, Prague, Czech Republic🗓 Date: 2–4 June 2026 📍 Location: Prague & Online 🔗 Register: Sign up here Join EURORDIS‑Rare Diseases Europe for the largest patient‑led rare disease policy event in Europe! Over […]
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Future for Rare Online Webinar
ONLINEJoin our friends at Genetic Alliance UK for this online webinar exploring the future of rare conditions policy across the UK. The Future for Rare campaign is gathering views from […]
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2nd European Congress on Rare Diseases & Orphan Drugs
Renaissance London Heathrow Hotel London, United KingdomThe 2nd European Congress on Rare Diseases & Orphan Drugs, organised by C2P Forum, brings together researchers, clinicians, industry leaders, policymakers and patient advocates to explore the latest advances in […]
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Corporate Partner Connect 2026 | Exclusive Partner Event
ONLINEPlease note: This event is by invitation and is exclusively for current Medics for Rare Disease corporate partners and sponsors. Corporate Partner Connect is an opportunity to: * Hear the […]
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RAREsummit26
Wellcome Genome Campus Conference CentreRAREsummit26 (Partner Event) 📅 Date: Wednesday 7 October 2026 📍 Location: Wellcome Genome Campus, Cambridge (with hybrid livestream option) We're delighted to share RAREsummit26, hosted by our friends at CamRARE […]
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World Orphan Drug Congress Europe 2026
RAI Congress Centre, Amsterdam Amsterdam, NetherlandsThe World Orphan Drug Congress Europe returns to Amsterdam from 26–28 October 2026, bringing together the global rare disease and orphan drug community for three days of collaboration, innovation and […]