Top tips for managing rare disease in GP
ONLINEThe RCGP Northern Ireland Faculty is delighted to be collaborating with the Northern Ireland Rare Disease Partnership (NIRDP) to host a 'Top Tips for Managing Rare Disease in GP' evening. […]
10 events found.
rare disease
Diagnosis and Management of Rare Diseases
ONLINEThis FREE live 90-minute webinar will focus on the diagnosis and management of rare diseases, in particular haematological conditions. The fundamentals of a rare disease - what is it? Who […]
Maximising engagement with healthcare professionals
Join this webinar to explore the practical things patient groups can do to make sure they are engaging with HCPs in the most beneficial way. Most rare diseases are not […]
Free
The International Rare Disease Showcase
ONLINEThe International Rare Disease Showcase is a virtual event like no other, bringing everyone together including, patient groups, researchers, medical professionals, industry representatives and of course patients themselves. Here's what to expect: Three […]
Lessons learned from the COVID-19 pandemic: Rare disease health and social care coordination
ONLINEDuring times of global disruption, it is often those who are already disadvantaged that are disproportionately affected. Theme 2 of the ARDEnt report highlights this impact on those with rare […]
The Unusual Suspects: rare disease in everyday medicine
LIVE STREAMThe Unusual Suspects: Rare disease in everyday medicine is returning to The Royal Society of Medicine on 9th February! The M4RD Annual Symposium has been a popular event in the rare disease […]
Lessons learned from the COVID-19 pandemic: Looking to the future with The UK Rare Diseases Framework
ONLINEJointly organised with ARDEnt, this webinar will discuss the recommendations the ARDEnt team is using to help inform how the UK is going to deliver its objectives set out in the […]
Not All Genes are Equal (Pint of Science)
Espresso Library 210 East Road, Cambridge, Cambridgeshire, United KingdomEvery person has two copies of each gene, one inherited from each parent. Most genes are the same in all people, but a small number of them are slightly different. […]
Curing with Kindness: Rare Childhood Brain Tumours (Pint of Science)
Espresso Library 210 East Road, Cambridge, Cambridgeshire, United KingdomResearchers developing new treatments for children with rare brain tumours know that it’s not a case of treating children like tiny adults and that surviving the disease isn’t enough. Reducing […]
Online workshop: Understanding access and reimbursement
ONLINEGetting wider access to drugs for as many patients a possible is a clear priority in the drug development process, especially for patient groups who are working to secure research […]