BPSU Tea Party
The British Paediatric Surveillance Unit invites you to this year's event to enjoy afternoon tea and cakes, hear young people speak about their experience of living with rare disease and visit informational stands.
Free
5 events found.
research
Events
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Royal College of Paediatrics and Child Health 5-11 Theobalds Road, London, United Kingdom
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Pompe Preceptorship
Mercure Hotel Manchester Manchester Piccadilly, Manchester, United KingdomPompe Preceptorship, hosted by Mark Holland from the Metabolic Unit, Manchester
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The 10th European Conference on Rare Diseases & Orphan Products (ECRD)
ONLINEPeople living with a rare disease have the right to reach their highest potential of well-being; join us online for ECRD 2020 to take part in discussions to inform and build the future ecosystem for rare disease policies and services.
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Facing up to the genomic gap: Tackling equality and diversity in genomics on
LIVE STREAMThis webinar is part of the popular Genetics of webinar series and will discuss the challenge of equality and diversity in genomic research and clinical settings and strategies to address this. Genomic research has traditionally been focused on caucasian populations, which leads to inherent biases in genomic findings translated into clinical research. Underrepresentation of other populations in […]
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BBS UK Annual Conference 2022
Hilton Hotel, Northampton 100 Watering Lane, Collingtree, United KingdomThis highly-anticipated event provides the unique opportunity to learn about the latest research, treatments, and day to day management of BBS, network with like-minded professionals and more importantly, learn from those living with Bardet-Biedl syndrome. The programme is still being finalised but will include: * Invaluable personal perspectives of living with BBS * An Update […]