The British Paediatric Surveillance Unit invites you to this year’s event to enjoy afternoon tea and cakes, hear young people speak about their experience of living with rare disease and visit informational stands.

The BPSU rare disease tea party will bring together stakeholders from across the rare disease community to hear young people and patient advocates speak about their experience of living with rare disease and working in the rare disease field.

This event is intended to be an informal networking opportunity with children and young people and carers, healthcare professionals, researchers and policy makers.