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The DFSG is a UK national charity, run by families for families affected by Duchenne...

 Patient Groups /  UK / 775 views / Popular

ArchAngel MLD Trust was established to support medical teams around the world who are working...

 Patient Groups /  UK / 764 views / Popular

Autoinflammatory UK is the UK's oldest and largest patient-run safe patient support group for patients...

 Patient Groups /  UK / 950 views / Popular

The Ectodermal Dysplasia Society is a charity dedicated to improving the health and well-being of...

 Patient Groups /  UK / 1042 views / Popular

SOFT UK was founded in 1990 by Christine Rose and Jenny Robbins. As mothers, they...

 Patient Groups /  UK / 887 views / Popular

ALK-positive lung cancer is a relatively rare form of lung cancer caused by the abnormal...

 Patient Groups /  UK / 1125 views / Popular

Whether you’re directly affected by Aicardi-Goutières syndrome, are interested to know more about the condition...

 Patient Groups /  UK / 941 views / Popular

The TAPS Support Foundation is a registered charity dedicated to changing the way monochorionic twin...

 Patient Groups /  UK / 895 views / Popular

Primary Ciliary Dyskinesia (PCD) is a rare genetic disease affecting 1 in 15,000 people in...

 Patient Groups /  UK / 1005 views / Popular

Supporting families affected by Chronic Granulomatous Disorder (CGD) in the UK. In March 2022 M4RD...

 Patient Groups /  UK / 918 views / Popular

Behçet’s UK represents all Behçet’s patients in the UK including those yet to be diagnosed. We...

 Patient Groups /  UK / 657 views / Popular

The Pituitary Foundation is a national support and information organisation for pituitary patients, their families,...

 Patient Groups /  UK / 1027 views / Popular

myaware provides expert support and advice for people affected by myasthenia. In February 2022 M4RD...

 Patient Groups / 1014 views / Popular

Supporting patients & families living with PIK3CA Related Overgrowth Spectrum (PROS). In January 2022 M4RD...

 Patient Groups /  UK / 1000 views / Popular

The CATS Foundation supports families affected by Tay-Sachs and Sandhoff disease. The CATS Foundation was...

 Patient Groups /  UK / 951 views / Popular

Cystinosis is a rare inherited disease occurring in about 1 in 200,000 births within developed...

 Patient Groups /  UK / 803 views / Popular

Birt-Hogg-Dubé syndrome is an inherited condition, characterised by the development of fibrofolliculomas (benign skin tumours),...

 Patient Groups /  UK / 828 views / Popular

Dedicated to improving the lives of those affected by Dravet Syndrome through support, education and...

 Patient Groups /  UK / 950 views / Popular

Ataxia UK is the leading charity in the UK that supports people affected by any...

 Patient Groups /  UK / 690 views / Popular

Wolfram Syndrome UK (WSUK) is the only charity and website in the UK for this...

 Patient Groups /  UK / 997 views / Popular

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