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Primary Ciliary Dyskinesia (PCD) is a rare genetic disease affecting 1 in 15,000 people in...

 Patient Groups /  UK / 260 views

Supporting families affected by Chronic Granulomatous Disorder (CGD) in the UK. In March 2022 M4RD...

 Patient Groups /  UK / 201 views

Behçet’s UK represents all Behçet’s patients in the UK including those yet to be diagnosed. We...

 Patient Groups /  UK / 201 views

The Pituitary Foundation is a national support and information organisation for pituitary patients, their families,...

 Patient Groups /  UK / 211 views

myaware provides expert support and advice for people affected by myasthenia. In February 2022 M4RD...

 Patient Groups / 207 views

Supporting patients & families living with PIK3CA Related Overgrowth Spectrum (PROS). In January 2022 M4RD...

 Patient Groups /  UK / 234 views

The CATS Foundation supports families affected by Tay-Sachs and Sandhoff disease. The CATS Foundation was...

 Patient Groups /  UK / 217 views

Cystinosis is a rare inherited disease occurring in about 1 in 200,000 births within developed...

 Patient Groups /  UK / 190 views

Birt-Hogg-Dubé syndrome is an inherited condition, characterised by the development of fibrofolliculomas (benign skin tumours),...

 Patient Groups /  UK / 206 views

Dedicated to improving the lives of those affected by Dravet Syndrome through support, education and...

 Patient Groups /  UK / 215 views

Ataxia UK is the leading charity in the UK that supports people affected by any...

 Patient Groups /  UK / 191 views

Wolfram Syndrome UK (WSUK) is the only charity and website in the UK for this...

 Patient Groups /  UK / 280 views

Addison’s Disease is a rare endocrine condition where the adrenal glands cease to function, so that your...

 Patient Groups /  UK / 245 views

Alex TLC is a trusted and experienced organisation offering support and information for all those...

 Patient Groups /  London / 277 views

Breaking Down Barriers is a network of 30 organisations working together to improve the lives...

 Patient Groups / 574 views / Popular

Designed to provide easily accessible and up to date information for anyone affected by genetic,...

 Patient Groups / 1088 views / Popular

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