Soft UK Healthcare Professionals Seminar
SOFT UK invites healthcare professionals to a transformative seminar focused on the power of language in supporting families navigating rare genetic diagnoses and ongoing care. This event offers a unique […]
8 events found.
Conference
Events
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Holiday Inn, Birmingham
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Genomics in Primary Care: What GPs need to know
ONLINEGenomic medicine has a significant impact within the field of primary care. Generally acting as the gateway to the NHS and specialised services, primary care practitioners are crucial in the […]
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Recommendation Writing Workshop
Edgbaston Park HotelMonday 23rd June 9.30 - 4pm at Edgbaston Park Hotel. LIMITED PLACES - reserve your spot now! Welcome to the IAG2 Face to Face Meeting! Medics for Rare Disease has […]
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Our Voices, Our Stories: Lived Experiences of Genomic Testing
ONLINEGenomic testing is a complex clinical topic, with new developments and discoveries taking place at a rapid rate. Often, we focus predominantly on the clinical and scientific aspects of genomics, […]
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Introduction to Delphi Studies
ONLINEHave you ever heard of a Delphi Study and not quite sure what it entails? Or maybe you have never heard of Delphi? This webinar will be providing training on […]
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RAREsummit25: CamRARE at 10 – Connecting Moments
Wellcome Genome Campus Conference Centre2025 marks a special milestone — CamRARE’s 10th anniversary. A decade of progress. A future of possibilities. Over the past decade, we have championed collaboration, amplified patient voices, and driven […]
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Demystifying the connection between patients and researchers
Kings College London Great Hall, King’s College London – Strand Campus, London, London, United KingdomCo-hosted by Medics for Rare Disease and King’s Health Partners Rare Disease Network 📅 Date: Friday 6 March 2026 ⏰ Time: 12:00 – 16:45 📍 Location: Great Hall, King’s College London – Strand Campus, WC2R 2LS (In-person event) About the event Medics for Rare Disease is pleased to be co-hosting a half-day, in-person event with […]
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European Conference on Rare Diseases & Orphan Products (ECRD 2026)
O2 universum Congress Centre Českomoravská 2345/17, Libeň, Prague, Czech Republic🗓 Date: 2–4 June 2026 📍 Location: Prague & Online 🔗 Register: Sign up here Join EURORDIS‑Rare Diseases Europe for the largest patient‑led rare disease policy event in Europe! Over three days, patients, advocates, clinicians, researchers, and policymakers will come together to discuss therapy access, diagnosis, care, innovation, and more. We’re proud to support EURORDIS […]