ECRD 2024
The 12th European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest, patient-led, rare disease policy-shaping event in which collaborative dialogue, learning and conversation takes […]
10 events found.
Conference
Events
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The Square Venue, Brussels
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Misdiagnosis and surgical uncertainty – A patient’s perspective
Charlotte Cuffe is a CAUK member and her patient story was recently featured in a prestigious global essay competition after she was interviewed by 5th Year Medical Student, Iman Muzafar. […]
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Rare Fest 2024
RAREfest24 A festival as unique as you are. For curious minds of all ages, for FREE. Fri 22 November – Launch Evening ‘Strictly Rare’ An evening of music, performance, comedy, […]
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Haematology
Alongside the British Society for Haematology this session will discuss management of sickle cell disease and the appropriate use of blood components. It will also explore diagnostic work up for […]
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Connecting the Dots: Oxford University Student Rare Disease Conference 2025
Magdalen College, University of OxfordThe Oxford Rare Disease Society (OxRare) and the Sherrington Society are excited to welcome you to “Connecting the Dots” – our first Oxford University Student Rare Disease Conference, taking place […]
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More Than You Can Imagine: Genomics and Rare Disease
ONLINEJoin Central and South Genomics for an insightful webinar in recognition of Rare Disease Day, where we bring together patients, healthcare professionals, and researchers to explore the latest in patient […]
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Swansea Rare Disease Study Day
Morriston Hospital Education Centre Heol Maes Eglwys Treforys SA6 6NLDive deep into the world of rare diseases at the first Swansea Rare Disease Study Day on 8th March 2025! Why attend? Gain invaluable insights from our expert guest speakers. […]
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Soft UK Healthcare Professionals Seminar
Holiday Inn, BirminghamSOFT UK invites healthcare professionals to a transformative seminar focused on the power of language in supporting families navigating rare genetic diagnoses and ongoing care. This event offers a unique […]
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Genomics in Primary Care: What GPs need to know
ONLINEGenomic medicine has a significant impact within the field of primary care. Generally acting as the gateway to the NHS and specialised services, primary care practitioners are crucial in the early identification of genetic conditions and in ensuring appropriate management of a range of conditions. Genomics features in everyday primary care practice in a range […]
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Recommendation Writing Workshop
Edgbaston Park HotelMonday 23rd June 9.30 - 4pm at Edgbaston Park Hotel. LIMITED PLACES - reserve your spot now! Welcome to the IAG2 Face to Face Meeting! Medics for Rare Disease has […]