The Unusual Suspects: rare disease in everyday medicine
We are delighted to announce our 10th annual symposium and, for the first time since 2020, it’s returning live and in-person! SAVE THE DATE... Join us on Wednesday 15th February […]
10 events found.
M4RD
Events
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Royal Society of Medicine 1 Wimpole Street, London, United Kingdom
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Reframing Rare Disease
Clare College Medical and Veterinary SocietyIt may be impossible for all doctors to have knowledge of more than 7,000 recognised rare diseases. However, it is feasible for all future and current medical professionals to learn […]
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RSE Network Support Meeting
ONLINERett syndrome is a rare, genetic, neurological disorder affecting mainly females (1:10,000) and very few males. It is present from conception. After a period of ‘near normal’ development, the child experiences a regression in key skills, usually mobility, speech and hand use between the ages of one and two years. The child may appear very […]
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Medicine and Me: Young sudden cardiac death
Royal Society of Medicine 1 Wimpole Street, London, United KingdomMedicine and Me meetings aim to provide an outline of current best practice and future updates for important conditions. They give a direct voice to patients and carers, enabling them to discuss their […]
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Building NHS healthcare professional awareness resources
ONLINECome along to learn more about how your voice can help healthcare professionals learn about rare disease. You will be joined by Kate Tatton-Brown and Alison Pope, Clinical Directors at NHS England, as they present the Genomics Education Programme and why it’s important. Please find the link to the zoom webinar here: https://us06web.zoom.us/j/84487083787 We would […]
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First, do no harm: Expert reflections on a rare bone disease
hunterian museumMedics4RareDiseases and FOP Friends, in collaboration with the Hunterian Museum at the Royal College of Surgeons of England, are hosting an evening reception for healthcare professionals, examining the contributions of […]
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Galactic Genomes: Exploring the Universe of Rare Diseases
Cambridge University“May the fourth be with you!” Cambridge University Rare Disease Society and Cambridge University Genomic Medicine Society are co-hosting a stellar event in Cambridge on Saturday 4 May. The day […]
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Connecting the Dots: Oxford University Student Rare Disease Conference 2025
Magdalen College, University of OxfordThe Oxford Rare Disease Society (OxRare) and the Sherrington Society are excited to welcome you to “Connecting the Dots” – our first Oxford University Student Rare Disease Conference, taking place […]
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#ShowYourStripes for Rare Disease Day 2025
ONLINECalling all healthcare professionals… dig out your stripey socks and get ready to ‘show your stripes’ as we approach Rare Disease Day on 28th February. Medics for Rare Disease is […]
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Ambassador Welcome Brew
ONLINEA short, casual catch-up for Medics for Rare Disease Ambassadors (cohort 2024/25) starting their second year on the Programme. These informal sessions allow the Ambassadors to ask questions of the […]