Refsum Disease from an Ophthalmology Perspective
ONLINEDr. Bart Leroy, MD, PhD will present the Ophthalmology side of Refsum Disease and the benefits of early diagnosis by clinicians Adult Refsum Disease is a genetic disorder impacting the […]
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Rare Diseases
The Unusual Suspects 2021
OnlineThe Unusual Suspects: Rare disease in everyday medicine is returning to The Royal Society of Medicine on 24th February! This year it will all be online, in the evening and […]
Free
Rare diseases in primary care – the needles in the haystack (but there are a lot of needles!)
ONLINEDr Will Evans will explain how rare diseases are not only relevant to general practice but how GPs are best placed to holistically support people with rare diseases and their […]
Inaugural Rare Disease Nurse Network Webinar
ONLINEAre you a nurse/allied health professional working or interested in rare diseases? RDNN are building a community to support each other, share stories and learn from their peers to improve […]
Ensuring inclusive communications around genetics
ONLINEGenetics is complex, and talk of genetics, and even science, can turn many people off from engaging with clinicians or self-management of their conditions. Findacure is teaming up with charity […]
RCPH-BPSU series: Bechet’s Syndrome in children and young people
ONLINEBehçet’s syndrome is a rare multi-system inflammatory condition characterised by recurrent oral ulceration, genital ulceration, eye and skin involvement. In this webinar, the panel of speakers will present the findings […]
Mobilising pathways to accommodate new transformative treatments – using CF as a case study
ONLINEJoin OPEN HEALTH for a live webinar exploring the journey of RARE pathway transformation and the introduction of disease-modifying treatments as part of their Rare Thoughts and Outcomes series. Learn […]
Precision Medicine & Rare Disease
ONLINEIf you work in rare diseases or rare disorders, this conference is one you cannot miss. Come and hear talks and discussions by leaders in academia, biotech, pharmaceuticals, diagnostics, clinical […]
Drug Repurposing for Rare Diseases 2021
ONLINEFindacure’s Drug Repurposing for Rare Diseases Conference is back for an eighth year, and this time, it’s gone virtual! Naturally, this year’s conference will be a little different. COVID-19 has […]
EURORDIS Summer School
ONLINEEURORDIS Summer School aims to provide rare disease patient advocates with the knowledge and skills needed to become experts in medicines research and development. Since 2015, researchers are also welcome […]