Virtual Rare Disease Showcase
Findacure's Rare Disease Showcase series is a celebration of rare disease projects around the UK Findacure's Virtual Showcase is designed to be a unique event, with interactive sessions taking place […]
Free
10 events found.
Rare Diseases
Events
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RareFest20
Guildhall Cambridge Cambridge, United KingdomFREE to attend, RAREfest20 is a full day Cambridge Rare Disease Network festival featuring interactive hands-on exhibits showcasing cool science, visionary technology, and pioneering organisations improving lives and bringing hope […]
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Being rare: a patient tale of being diagnosed in an OSCE
ONLINEWyburn-Mason syndrome. Ever heard of it? Dan Jeffries has, and his insightful talk explores what it's like living with one of the world's rarest medical conditions – to then discover […]
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Refsum Disease from an Ophthalmology Perspective
ONLINEDr. Bart Leroy, MD, PhD will present the Ophthalmology side of Refsum Disease and the benefits of early diagnosis by clinicians Adult Refsum Disease is a genetic disorder impacting the […]
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The Unusual Suspects 2021
OnlineThe Unusual Suspects: Rare disease in everyday medicine is returning to The Royal Society of Medicine on 24th February! This year it will all be online, in the evening and free so there is nothing stopping you from joining us. We will be focusing on DIAGNOSIS. Why is a diagnosis so important and why is […]
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Rare diseases in primary care – the needles in the haystack (but there are a lot of needles!)
ONLINEDr Will Evans will explain how rare diseases are not only relevant to general practice but how GPs are best placed to holistically support people with rare diseases and their […]
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Inaugural Rare Disease Nurse Network Webinar
ONLINEAre you a nurse/allied health professional working or interested in rare diseases? RDNN are building a community to support each other, share stories and learn from their peers to improve […]
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Ensuring inclusive communications around genetics
ONLINEGenetics is complex, and talk of genetics, and even science, can turn many people off from engaging with clinicians or self-management of their conditions. Findacure is teaming up with charity […]
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RCPH-BPSU series: Bechet’s Syndrome in children and young people
ONLINEBehçet’s syndrome is a rare multi-system inflammatory condition characterised by recurrent oral ulceration, genital ulceration, eye and skin involvement. In this webinar, the panel of speakers will present the findings […]
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Mobilising pathways to accommodate new transformative treatments – using CF as a case study
ONLINEJoin OPEN HEALTH for a live webinar exploring the journey of RARE pathway transformation and the introduction of disease-modifying treatments as part of their Rare Thoughts and Outcomes series. Learn […]