A Puff of Smoke Talk and Workshop w/ author and artist Sarah Lippett
The Centre for Better Health 1A Darnley Road, London, United KingdomJoin author and artist Sarah Lippett to explore the power of sequential narrative.
£5.98 – £7.50
10 events found.
Rare Diseases
Rare disease spotlight: Aspergillosis
Barts & The London School of Medicine - Garrod Building London, United KingdomShining the light on Aspergillosis
Drug Repurposing for Rare Diseases 2020 Conference
America Square Conference Centre 17 America Square, London, United KingdomFindacure's Drug Repurposing for Rare Diseases Conference is returning for its seventh consecutive year!
£37.39 – £94.59
The 10th European Conference on Rare Diseases & Orphan Products (ECRD)
ONLINEPeople living with a rare disease have the right to reach their highest potential of well-being; join us online for ECRD 2020 to take part in discussions to inform and build the future ecosystem for rare disease policies and services.
to be reviewed
COVID-19 and rare diseases: Risks and opportunities posed by the pandemic
WebinarThis unique webinar unites experts from primary care, advocacy and medical genetics within the rare disease sector to discuss the impact of the virus on the rare disease community. Participants will hear about the short and long-term impact of shielding, consider how to best protect vulnerable populations in the future, and reflect on the potential […]
Free webinar
Vasculitis: registries, pathways and therapeutics
This free 2 day webinar will provide a comprehensive update on all UKIVAS group activities and plans for the future, along with recent clinical and research updates in vasculitis. This is a multidisciplinary webinar where adult and paediatric vasculitis management will be examined. The themes highlighted are relevant to; renal, rheumatology, respiratory, ENT, dermatology and […]
FREE
Virtual Rare Disease Showcase
Findacure's Rare Disease Showcase series is a celebration of rare disease projects around the UK Findacure's Virtual Showcase is designed to be a unique event, with interactive sessions taking place over a three-day period, including conversations on telemedicine, artificial intelligence, patient group innovations, and the impact of Covid-19 on rare diseases. Our online stage will […]
Free
RareFest20
Guildhall Cambridge Cambridge, United KingdomFREE to attend, RAREfest20 is a full day Cambridge Rare Disease Network festival featuring interactive hands-on exhibits showcasing cool science, visionary technology, and pioneering organisations improving lives and bringing hope to those affected by rare diseases. Alongside the exhibition there'll be inspiring talks from experts and powerful patient voices, rare disease inspired art and films.
Being rare: a patient tale of being diagnosed in an OSCE
ONLINEWyburn-Mason syndrome. Ever heard of it? Dan Jeffries has, and his insightful talk explores what it's like living with one of the world's rarest medical conditions – to then discover you have another one. Barts & The London Students for Rare Diseases are excited to invite you to their first online event of the year! […]
Refsum Disease from an Ophthalmology Perspective
ONLINEDr. Bart Leroy, MD, PhD will present the Ophthalmology side of Refsum Disease and the benefits of early diagnosis by clinicians Adult Refsum Disease is a genetic disorder impacting the metabolism of phytanic acid. The key symptoms are Retinitis Pigmentosa, loss of smell, hearing loss, numbness, balance issues, itchy skin, shortened fingers and toes. It […]