BPSU Tea Party
The British Paediatric Surveillance Unit invites you to this year's event to enjoy afternoon tea and cakes, hear young people speak about their experience of living with rare disease and visit informational stands.
The British Paediatric Surveillance Unit invites you to this year's event to enjoy afternoon tea and cakes, hear young people speak about their experience of living with rare disease and visit informational stands.
RAREsummit19 is a 1 day summit focusing on patient centricity in rare disease - mastery, opportunities and trends in the drug development process, healthcare and assistive technologies.
Pompe Preceptorship, hosted by Mark Holland from the Metabolic Unit, Manchester
Great opportunity to learn more about Rett syndrome and how to support people with the disorder
Join Sarah Lippett to celebrate the publication of A Puff of Smoke on the 1st of November 6-9pm at The Centre for Better Health in London.
Join author and artist Sarah Lippett to explore the power of sequential narrative.
Shining the light on Aspergillosis
Findacure's Drug Repurposing for Rare Diseases Conference is returning for its seventh consecutive year!
People living with a rare disease have the right to reach their highest potential of well-being; join us online for ECRD 2020 to take part in discussions to inform and build the future ecosystem for rare disease policies and services.
This unique webinar unites experts from primary care, advocacy and medical genetics within the rare disease sector to discuss the impact of the virus on the rare disease community. Participants will hear about the short and long-term impact of shielding, consider how to best protect vulnerable populations in the future, and reflect on the potential […]