Shining a Light on Silver-Russell Syndrome (SRS) on Rare Disease Day
ONLINEJoin us for this ONLINE event on Rare Disease Day 2023, find out about how rare genetic conditions, like SRS, are diagnosed and hear about what it’s like to live […]
9 events found.
Rare Diseases
Conducting rare disease research in the context of clinical care
ONLINE11.00 am Introduction and welcome Tony Lockett (CPMR London) 11.05 am Dr Lucy McKay (Medics for rare diseases)- Can Medical Education Help in the Conduct of Research in Rare Diseases? […]
Beyond the Student Voice Prize
LIVE STREAMThe Student Voice Prize is delighted to invite you to our second annual virtual rare disease day event 'Beyond the Student Voice Prize;' an opportunity to connect with peers and […]
Reframing Rare Disease
Clare College Medical and Veterinary SocietyIt may be impossible for all doctors to have knowledge of more than 7,000 recognised rare diseases. However, it is feasible for all future and current medical professionals to learn when to suspect a rare disease, to appreciate that rare diseases are collectively common and to recognise the exceptional challenges faced by those affected. At […]
Free
RSE Network Support Meeting
ONLINERett syndrome is a rare, genetic, neurological disorder affecting mainly females (1:10,000) and very few males. It is present from conception. After a period of ‘near normal’ development, the child experiences a regression in key skills, usually mobility, speech and hand use between the ages of one and two years. The child may appear very […]
SFGH Global Health Conference
Manchester Royal InfirmaryStudents for Global Health is excited to announce that our Annual Global Health Conference which will be held in Manchester over the weekend of March 25th-26th! Students for Global Health is an organisation, network and community. In our 20 year history, we have evolved into the leading student voice for health, representing students who are […]
£15
Rare @ Manchester – 1st Anniversary Celebration Event
Citylabs 1.0 Nelson Street Manchester M13 9NQWe are thrilled to invite you to this special event to mark the one-year anniversary of the Manchester Rare Conditions Centre. This event will highlight the significant strides Manchester has […]
#ShowYourStripes for Rare Disease Day 2025
ONLINECalling all healthcare professionals… dig out your stripey socks and get ready to ‘show your stripes’ as we approach Rare Disease Day on 28th February. Medics for Rare Disease is […]
Recommendation Writing Workshop
Edgbaston Park HotelMonday 23rd June 9.30 - 4pm at Edgbaston Park Hotel. LIMITED PLACES - reserve your spot now! Welcome to the IAG2 Face to Face Meeting! Medics for Rare Disease has […]