Join us on Friday, 28th February, from 16:00–18:00 at Formby Room, Cedar House, University of Liverpool. This seminar is an exciting opportunity to learn from an expert speaker, hear powerful patient stories, and explore the crucial role of rare disease awareness in medical education. Refreshments will be provided! Programme Highlights Rare 101 – An introduction […]
Dive deep into the world of rare diseases at the first Swansea Rare Disease Study Day on 8th March 2025! Why attend? Gain invaluable insights from our expert guest speakers. Learn from our engaging panel discussions. Meet a range of local patient advocacy groups to discover more about the lived reality of those impacted by […]
SOFT UK invites healthcare professionals to a transformative seminar focused on the power of language in supporting families navigating rare genetic diagnoses and ongoing care. This event offers a unique […]
