Spotlight on the Unseen
University of LiverpoolJoin us on Friday, 28th February, from 16:00–18:00 at Formby Room, Cedar House, University of Liverpool. This seminar is an exciting opportunity to learn from an expert speaker, hear powerful […]
8 events found.
Swansea Rare Disease Study Day
Morriston Hospital Education Centre Heol Maes Eglwys Treforys SA6 6NLDive deep into the world of rare diseases at the first Swansea Rare Disease Study Day on 8th March 2025! Why attend? Gain invaluable insights from our expert guest speakers. […]
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Soft UK Healthcare Professionals Seminar
Holiday Inn, BirminghamSOFT UK invites healthcare professionals to a transformative seminar focused on the power of language in supporting families navigating rare genetic diagnoses and ongoing care. This event offers a unique […]
Genomics in Primary Care: What GPs need to know
ONLINEGenomic medicine has a significant impact within the field of primary care. Generally acting as the gateway to the NHS and specialised services, primary care practitioners are crucial in the […]
Recommendation Writing Workshop
Edgbaston Park HotelMonday 23rd June 9.30 - 4pm at Edgbaston Park Hotel. LIMITED PLACES - reserve your spot now! Welcome to the IAG2 Face to Face Meeting! Medics for Rare Disease has […]
Our Voices, Our Stories: Lived Experiences of Genomic Testing
ONLINEGenomic testing is a complex clinical topic, with new developments and discoveries taking place at a rapid rate. Often, we focus predominantly on the clinical and scientific aspects of genomics, […]
Introduction to Delphi Studies
ONLINEHave you ever heard of a Delphi Study and not quite sure what it entails? Or maybe you have never heard of Delphi? This webinar will be providing training on […]
RAREsummit25: CamRARE at 10 – Connecting Moments
Wellcome Genome Campus Conference Centre2025 marks a special milestone — CamRARE’s 10th anniversary. A decade of progress. A future of possibilities. Over the past decade, we have championed collaboration, amplified patient voices, and driven […]