Your Rare Event Toolkit: Plan, Run, Inspire
Thinking of running a Rare Disease event in 2026? Whether it’s a seminar, study day, or conference — this session is for you. Join Medics for Rare Diseases and our […]
Thinking of running a Rare Disease event in 2026? Whether it’s a seminar, study day, or conference — this session is for you. Join Medics for Rare Diseases and our […]
Join our Medics for Rare Disease alumni online meetup: Brew & Banter Edition! ☕💬 Reconnect with fellow alumni in this relaxed virtual catch-up. Hear updates from our current ambassadors, share […]
Learn how to deliver engaging Rare Disease 101 talks with tips, resources, and insights from experienced ambassadors. Thinking of running a Rare 101 training session in 2026? Whether you’re planning […]
Join Rare Diseases International for this public webinar where they will discuss the current status of the WHA Resolution implementation, as they approach the World Health Organization Executive Board meeting […]
Kick off the New Year with a cuppa and a catch-up at our New Year Ambassador Brew ☕ This relaxed, virtual get-together is a chance for our Ambassador community to reconnect, welcome new faces, and ease into the year ahead together. There’s no formal agenda - just good conversation, shared experiences, and space to reflect […]
Learn how to deliver engaging Rare Disease 101 talks with tips, resources, and insights from experienced ambassadors. Thinking of running a Rare 101 training session in 2026? Whether you’re planning […]
Connect with healthcare professionals and students from around the world for a dynamic discussion on rare disease medical training across global contexts. As part of this interactive session, we’ll also […]
Join Medscape for a live educational session, ‘When to Suspect a Rare Disease in Any Practice Setting’, featuring our very own CEO Lucy McKay. This live-streamed event will take place on February 26, 2026, at 2 PM GMT / 3 PM CET and will explore practical insights to help clinicians recognize when a rare disease […]
Join Central and South Genomics for an insightful webinar in recognition of Rare Disease Day, where they will bring together patients, healthcare professionals, and researchers to explore the latest in patient advocacy, genomics and rare disease. This event is for everyone, whether you're from a healthcare background, have been affected by a rare disease, or […]
Rare Disease Day 2026 is your chance to stand with the 3.5 million people in the UK living with a rare disease, and to take one small action that can […]