Medical students at UWA have been raising awareness of rare diseases since 2016. They have produced infograms, produced engaging videos and run local events. Our founder, Lucy, even produced a video about our work for them to play in a medical school lecture!
They have strong links with The Undiagnosed Disease Programme, WA (UDP-WA). This programme is the first of it’s type in the country and it aims to provide diagnoses to people with undiagnosed complex and long-term conditions.