The BHD Foundation
by Eleanor Churchill / 10 views / New
We are a rare disease charity supporting patients with BHD Syndrome (Birt-Hogg-Dubé Syndrome), a rare genetic condition affecting the lungs, skin and increases the risk of developing kidney cancer. We provide patient resources and information on the condition as well as a list of doctors who work with the condition on our website. We work in patient advocacy, and were involved in the first European guidelines for diagnosing and managing BHD from ERN GENTURIS (the European Reference Network)
You can read the BHD Clinical guidelines from ERN below
https://www.genturis.eu/l=eng/guidelines-and-pathways/clinical-practice-guidelines/bhd-syndrome-guideline.html
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