Ambassador Welcome Brew
ONLINEA short, casual catch-up for Medics for Rare Disease Ambassadors (cohort 2024/25) starting their second year on the Programme. These informal sessions allow the Ambassadors to ask questions of the […]
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Rare Disease Day 2026: Launch Webinar
ONLINEJoin one of two upcoming webinars on either the 27 or 28 October for a first look at Rare Disease Day 2026! Learn more about the resources which have been […]
RAREsummit25: CamRARE at 10 – Connecting Moments
Wellcome Genome Campus Conference Centre2025 marks a special milestone — CamRARE’s 10th anniversary. A decade of progress. A future of possibilities. Over the past decade, we have championed collaboration, amplified patient voices, and driven […]
EDIRA ‘Let’s COCO: Celebrating the Doers
Edgbaston Park HotelA Hybrid event celebrating DOERS who showcase their Collaboration - Outreach - Co-creation projects with impactful Outcomes. This is your chance to be part of a dynamic, hybrid gathering.
Your Rare Event Toolkit: Plan, Run, Inspire
ONLINEThinking of running a Rare Disease event in 2026? Whether it’s a seminar, study day, or conference — this session is for you. Join Medics for Rare Diseases and our […]
Rare 101: Train the Trainer – Plan Your Own Rare Disease Session
ONLINELearn how to deliver engaging Rare Disease 101 talks with tips, resources, and insights from experienced ambassadors. Thinking of running a Rare 101 training session in 2026? Whether you’re planning […]