RAREsummit19 is a 1 day summit focusing on patient centricity in rare disease - mastery, opportunities and trends in the drug development process, healthcare and assistive technologies.
Join Findacure for The Manchester Rare Disease Showcase – a day long conference celebrating rare disease developments in Manchester and North West England.
Great opportunity to learn more about Rett syndrome and how to support people with the disorder
Findacure's Drug Repurposing for Rare Diseases Conference is returning for its seventh consecutive year!
People living with a rare disease have the right to reach their highest potential of well-being; join us online for ECRD 2020 to take part in discussions to inform and build the future ecosystem for rare disease policies and services.
FREE to attend, RAREfest20 is a full day Cambridge Rare Disease Network festival featuring interactive hands-on exhibits showcasing cool science, visionary technology, and pioneering organisations improving lives and bringing hope to those affected by rare diseases. Alongside the exhibition there'll be inspiring talks from experts and powerful patient voices, rare disease inspired art and films.
The Unusual Suspects: Rare disease in everyday medicine is returning to The Royal Society of Medicine on 24th February! This year it will all be online, in the evening and free so there is nothing stopping you from joining us. We will be focusing on DIAGNOSIS. Why is a diagnosis so important and why is […]
Come together with like minded professionals who have a passion to ensure no one is left behind. Hear from organisations who are leading the way in engaging with our diverse and multi-cultural society, the importance of the language used, developments in genetics and how health inequalities can have a devastating impact on the lives of […]
Hear from and engage with a range of stakeholders pioneering change across the rare disease landscape... CRDN's RAREsummit21 is a platform for change. It is the infrastructure that unites patients, advocates, experts and leaders to address the challenges faced by people affected by rare diseases. By sharing knowledge and experience, the journey towards better diagnosis, […]
NORD Rare Diseases and Orphan Products Breakthrough Summit is back on 18 & 19 October 2021 offering a two-day virtual programme. The summit will discuss the latest updates on: rare disease diagnosis and research genetics and genomics drug development and patient engagement FDA oversight A limited number of free passes may be available to patient […]