Understanding Rare Disease: Communicating with Patients
Sign up to learn about the role of communication in rare disease from those affected directly, in an interactive FREE virtual event! About this event The event will kick off […]
10 events found.
Rare Diseases
The genetics of intellectual disability: Episode 15
LIVE STREAMThis webinar is part of the popular Genetics of webinar series and will provide an interesting update on the genetic origins of intellectual disability, as well as explore what challenges remain in […]
Hypermobility syndrome: A practical guide to assessment, management and care
Royal Society of Medicine 1 Wimpole Street, London, United KingdomJoin the RSM at this multidisciplinary event which will provide a valuable overview and a broader understanding of hypermobility syndrome and the care of these patients. Experts in their field […]
11th European Conference on Rare Disease & Orphan Products (ECRD)
ONLINEThe European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork […]
BBS UK Annual Conference 2022
Hilton Hotel, Northampton 100 Watering Lane, Collingtree, United KingdomThis highly-anticipated event provides the unique opportunity to learn about the latest research, treatments, and day to day management of BBS, network with like-minded professionals and more importantly, learn from […]
Drug Repurposing for Rare Diseases 2022
America Square Conference Centre 17 America Square, London, United KingdomWe are delighted to announce Beacon's ninth annual Drug Repurposing for Rare Diseases Conference and, for the first time since 2020, it’s returning live and in-person! This annual conference, Drug […]
£30
Innovation Bootcamp in Rare Diseases 2022
Maison de la Poste Rue Picard 5/7, Brussels, BelgiumThe third edition of the Innovation Bootcamp in Rare Diseases (IBRD2022) congress in Brussel will be held on October 11th 2022. The target audience of this event includes all professionals […]
Young People’s Genomics Café
LIVE STREAMAre you a young person interested in finding out more about genomics and health, or affected by a rare or genetic condition? Chromosomes! Dr Andrew Fry, Clinical Senior Lecturer in […]
Hypermobility spectrum disorders(HSD) and Hypermobile Ehlers-Danlos syndrome (hED)
LIVE STREAMTraining for Health Professionals on hypermobility spectrum disorders(HSD) and Hypermobile Ehlers-Danlos syndrome (hEDS) The online course includes presentations and interactive case-based sessions for Health Professionals and those who wish to gain […]
£25
Understanding ME/CFS, symptom crossover with hEDS/HSD and implications for Long Covid
LIVE STREAMDr Sue Pemberton PhD is a qualified occupational therapist who was involved in setting up the Leeds based Chronic Fatigue Syndrome Service in 1990, one of the first NHS clinics […]
£25